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Resources

For people with Down syndrome, family members, caregivers and professionals.

Global Medical Care Guidelines for Adults with Down Syndrome

March 2022 | Medical Care Guidelines for Adults with Down Syndrome Workgroup - Global Down Syndrome Foundation

On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA) in an article called "Medical Care of Adults with Down Syndrome: A Clinical Guideline." They provide evidence-based recommendations to support healthcare providers in their care of adults with Down syndrome.

The links below take you to the guidelines as well as a guidelines checklist, diabetes toolkit, and celiac disease checklist. These links are from the Global Medical Care Guidelines for Adults with Down Syndrome page The preceding link opens in a new tab or window on the Global Down Syndrome Foundation website. Global requires users to provide their name and email address in order to download the documents. 

Family-Friendly Guidelines The preceding link opens in a new tab or window

Full Guidelines The preceding link opens in a new tab or window

Checklist The preceding link opens in a new tab or window

Diabetes Toolkit The preceding link opens in a new tab or window

Celiac Disease Checklist The preceding link opens in a new tab or window

Article in JAMA The preceding link opens in a new tab or window

 

The guidelines address behavior, dementia, diabetes, cardiovascular disease, obesity, atlantoaxial instability, osteoporosis, thyroid, and celiac disease.

 
 
GLOBAL_Guidelines_for_Families
 
 
 
GLOBAL Medical Care Guidelines - full
 
 
 
Global Medical Care Guidelines - checklist
 
 
 
2021-GLOBAL-Guideline-Diabetes-Toolkit
 
 
 
Celiac_disease_checklist
 
 
 
JAMA-cover_2019
 
 
Information about medical care guidelines for children and adolescents with Down syndrome can be found here.
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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