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For people with Down syndrome, family members, caregivers and professionals.

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Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? Many organizations - including the Adult Down Syndrome Center - have compiled lists of ideas. Please see the links below!  Adult Down Syndrome Center 21 Healthy Ways to Celebrate WDSD (they apply all year long!) -  l

Aggressive Behavior and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I received the question below:  I am writing to you for advice on how to handle extreme aggressive behavior my 48-year-old son has been displaying. This has been going on now for over a year and it continues to get worse. I have contacted my local regional center and Down syndrome associati

Aging and Alzheimer's Disease in Adults with Down Syndrome Webinar Recording (11/10/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on November 10, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrome Center. Dr. Frank is the occupational therapist at the Center. In this presentation, they discu

Aging and Alzheimer's Disease in Adults with Down Syndrome Webinar Slides (11/10/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L

This document contains the slides from a webinar on aging and Alzheimer's disease in presented by Drs. Brian Chicoine and Katie Frank on 11/10/2020. Life expectancy is also discussed.

Aging and Down Syndrome: A Health & Well-Being Guidebook

Author: National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society . According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can se

Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer's disease, suggestions about how to carefully and thoughtfully evaluate changes that may be

Alzheimer's Disease Among People with Down Syndrome Presentation (11/28/2017)

Author: Dan Kuhn, LCSW - Vice President of Education at All Trust Home Care

The video below is a recording of a presentation given by Dan Kuhn, LCSW, Vice President of Education at All Trust Home Care, at the Adult Down Syndrome Center on November 28, 2017. He covered a variety of topics related to Alzheimer's disease (AD) including diagnosing and treating AD, preva

Alzheimer's Disease in Down Syndrome Presentation (2/26/2019)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a presentation called "Alzheimer's Disease in Down Syndrome" given by Brian Chicoine, MD on February 26, 2019. He provides an overview of Alzheimer's disease in adults with Down syndrome and covers topics including symptoms, diagnos

Alzheimer's Disease Video Journal Segment 1

Author: Adult Down Syndrome Center - Video Journal

The video below is the first segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 2

Author: Adult Down Syndrome Center - Video Journal

The video below is the second segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Colle

Alzheimer's Disease Video Journal Segment 3

Author: Adult Down Syndrome Center - Video Journal

The video below is the third segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 4a

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiv

Alzheimer's Disease Video Journal Segment 4b

Author: Adult Down Syndrome Center - Video Journal

The video below is the fourth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiv

Alzheimer's Disease Video Journal Segment 5a

Author: Adult Down Syndrome Center - Video Journal

The video below is the fifth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 5b

Author: Adult Down Syndrome Center - Video Journal

The video below is the fifth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 6

Author: Adult Down Syndrome Center - Video Journal

The video below is the sixth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Collee

Alzheimer's Disease Video Journal Segment 7

Author: Adult Down Syndrome Center - Video Journal

The video below is the seventh segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Coll

Alzheimer's Disease Video Journal Segment 8

Author: Adult Down Syndrome Center - Video Journal

The video below is segment 8a of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Colleen and B

Alzheimer's Disease Video Journal Segment 8b

Author: Adult Down Syndrome Center - Video Journal

The video below is segment 8b of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer's disease in December 2016, and Bo Thompson, Colleen's sister and caregiver. Coll

Alzheimer's Orientation Book

Author: Adult Down Syndrome Center

An orientation book can be used for people with Alzheimer’s disease or dementia to help them remember things about their daily life.

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - EClinicalMedicine (2020)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregivers 

Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract: Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether mammography screening strategies used for women without Down syndrome would benefit women with Down

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Recommendations for breast cancer screening have varied over time and continue to vary. Organizations have different recommendations for when women should start being screened for breast cancer and how often they should be screened. Breast cancer is most commonly screened for with a mammogram, or an

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine, Roth, Chicoine, & Sulo - Intellectual and Developmental Disabilities (2015)

Abstract: This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women and results of 993 mammograms were reviewed, including 902 screening and 93 diagnostic mammograms. O

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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