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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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"If you have met one person with Down syndrome, you have met one person with Down syndrome" is a sentiment often shared in the Down syndrome community. We certainly know this idea ap
UPDATED 9/9/2022 The physicians of the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follow the recommendations of
The video below is a recording of a webinar presented by Brian Chicoine, MD of the Adult Down Syndrome Center. Individuals with Down syndrome may experience decline in skills for many reasons
Constipation is a common problem in people with Down syndrome as well as the general population. Studies show that chronic constipation affects between 2 and 27% of the general population. It is thoug
We like to use visual supports to set or manage expectations. One type of visual support that can be helpful is a first/then board. When using a visual support, there can be words, pictures, or a comb
Abstract Objective: To develop standardization for nomenclature, diagnostic work up and diagnostic criteria for cases of neurocognitive regression in Down syndrome. Background: The
Electroconvulsive therapy (ECT) is a treatment that involves sedating an individual with anesthesia and then inducing a seizure with a short electrical stimulation of the brain (more information can b
Visuals tend to be most effective when they are individualized. What works for one person may be different than what works for another person. Schedules are one example of a type of visual that may va
Abstract Background: Down syndrome regression disorder is a symptom cluster consisting of neuropsychiatric regression without cause. This study evaluated the incidence of neurodiagnostic abn
We have found that incorporating games into our social skills groups can help convey important messages as well as help participants practice appropriate social skills in a non-threa
Click here to access the Speaker Series Overview (from the DSMIG-USA website) The Down Syndrome Medical Interest Group-USA (DSMIG-USA ) Speaker Series consists of webinars and enduring materials desig
We have only seen or heard of a few cases of severe COVID-19 infection in our patients with Down syndrome who have received COVID-19 vaccines. Our experience has been consistent with the data
This social story talks about privacy using pictures appropriate for women.
This social story talks about privacy using pictures appropriate for men.
This visual handout explains what consent is and why it is important in relationships.
Abstract People with intellectual and developmental disabilities have a higher risk of mortality from COVID-19 than the general population. Providers may assume that this is due to the burden of comor
Irritable bowel syndrome (IBS) is a health issue in the intestines (bowels). It is not clear how common it is in people with Down syndrome (DS). However, we suspect that IBS is more common i
Abstract Individuals with Down syndrome (DS) are among the groups with the highest risk for severe COVID-19. Better understanding of the efficacy and risks of COVID-19 vaccines for individuals with DS
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
We have shared both our clinical experience and studies that demonstrate clinical effectiveness and safety of COVID-19 vaccines in people with Down syndrome. However, until recently, studies have not
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical
This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!
Abstract Background: The Down syndrome population has been disproportionately affected by Coronavirus 2019 (COVID-19) in terms of experiencing severe illness and death. Soc
The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Hannah Graham, MD of the Adult Down Syndrome Center in Park Ridge, IL. The providers responded
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.