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For people with Down syndrome, family members, caregivers and professionals.

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Duration: 14 ms, Number of Results: 85

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Balance and Down Syndrome

Author: Jennifer Spiric, PT, DPT and Brian Chicoine, MD - Mann Method PT and Fitness and Adult Down Syndrome Center

Key Points Differences in the body's sensory systems in people with Down syndrome can contribute to impairments in balance. Impaired balance can limit the ability or willingness of people with

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Heart Rates and Exercise

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What are maximum and target heart rates? Maximum heart rate (MHR) and target heart rate (THR) are values that are often used in exercise recommendations. Maximum heart rate is the estimated fastest ra

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A Change in Behavior in a Person with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A change in behavior is often noted in people with Down syndrome (DS) who have Alzheimer’s disease (AD). For some individuals, this is a natural part of the progression of AD. However, for o

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Tips for Being Physically Active Video

Author: Adult Down Syndrome Center - Video

It is important to be active and exercise. It helps us be strong and healthy! In this video, Jenny and Kathy share tips for being active, including ways we can be active and how to make exercising mor

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Compression Socks for People with Down Syndrome

Author: Sarah Mann, PT, DPT, MBA, NSCA-CPT and Brian Chicoine, MD - Mann Method PT and Fitness and Adult Down Syndrome Center

Key Points Many people with Down syndrome have increased lower leg and foot swelling. People with Down syndrome appear to have varicose veins more commonly than people without Down syndrome. 

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

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Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum (9/26/2024)

Author: Brian Chicoine, MD, Seth Keller, MD, and Amy Kolb-Tucker - Stanford University School of Medicine, the Stanford Alzheimer's Disease Research Center, and National Task Group for Intellectual Disabilities and Dementia Practices

On September 26, 2024, a virtual forum on Alzheimer's disease and Down syndrome was held. Title:  Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opp

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Respiratory Syncytial Virus (RSV) Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is respiratory syncytial virus (RSV)? RSV is a virus that causes a common respiratory infection. The infection is usually mild and causes cold-like symptoms. People usually recover in a week or t

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Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Antibodies Against Measles

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is measles? Measles is a highly contagious viral infection. Due to the availability and effectiveness of vaccines, many individuals have never experienced or even seen measles in the United State

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Measles and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Measles is a highly contagious infection. It can have very serious complications. There has been a recent increase in measles infections.  Little is known about measles infection s

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Reducing Risk of Getting Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Alzheimer's disease is more common in people with Down syndrome. Presently, we do not know how to prevent or cure Alzheimer's disease. We may lower the risk of developing Al

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Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

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Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

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Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical

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Support Groups for Caregivers of Individuals with Down Syndrome and Alzheimer's Disease

Author: Various Organizations - Resource List

Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and

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Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

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Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer

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Steps to Accessing Adult Services and Supports

Author: Ann Garcia - Patient Advocate, Adult Down Syndrome Center

While special education services are an entitlement, adult services are based on eligibility and availability of funding. In the adult developmental disabilities system, Medicaid is the primary paymen

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Alternatives to Guardianship

Author: Ann Garcia - Patient Advocate

Families trying to decide what level of support would work best for their adult family member with Down syndrome may want to look at options besides guardianship . Individuals with Down syndrome and t

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Guardianship

Author: Ann Garcia - Patient Advocate

Whether you decide to obtain guardianship for your child is an individual family decision that should be considered carefully. If your child is 18 years old and is unable to make decisions about finan

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Development of a Physical Therapy-Based Exercise Program for Adults with Down Syndrome

Author: Mann et al. - International Journal of Environmental Research and Public Health

Abstract In adults with Down syndrome, the combination of low physical activity and fitness levels and the high prevalence of musculoskeletal co-morbidities stresses the need for specialized exercise

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Mann Method PT Exercises

Author: Mann et al. - Mann Method Physical Therapy and Fitness

The Mann Method PT Exercise Program - Prescription Chart    contains a list of exercises developed for people with Down syndrome. The list includes foundational exercises, hip streng

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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