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For people with Down syndrome, family members, caregivers and professionals.

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Visual Supports

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

When I was trying to figure out how I was going to share information about visual supports, I came across someone who used the following poem (author unknown) to describe what it feels like when visua

Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle et al. - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine et al. - Intellectual and Developmental Disabilities (2015)

Abstract This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women a

Jenny's Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

Author: Karen Watchman, Irene Tuffrey-Wijne, & Sam Quinn - University of Stirling

The resource linked below is a free to download booklet and set of postcards aimed at supporting conversations about dementia with people who have an intellectual disability. https://www.learningdisab

The Utility of Anti-Tissue Transglutaminase Antibody-IgA (tTG-IgA) Testing for Celiac Disease in Adults with Down Syndrome

Author: Chicoine, Parikh, Sulo, & Chicoine - American Journal of Clinical Medicine

Abstract Objectives:  We assessed the diagnostic accuracy of the anti-tissue transglutaminase IgA antibody (tTG-IgA) test compared to esophagogastroduodenoscopy (EGD) in adults with Down&

Celiac Disease and Obsessive Compulsive Disorder

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Can celiac disease cause obsessive compulsive disorder? This question was recently asked by a family member of a person with Down syndrome.  I have reviewed several articles and other informa

Nursing Home Placement

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Placement of individuals with Down syndrome in nursing homes has been a challenging issue for a number of years. In Illinois, many individuals with intellectual disabilities were sent to live in nursi

Celiac Testing in Adolescents and Adults with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The starting place for making the diagnosis of celiac disease is the history and physical exam. The symptoms of celiac disease can vary widely (see resource on the description of celiac disease). The

Celiac Treatment

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

How is celiac disease treated? The treatment for celiac disease is diet. It requires strict adherence to eliminating gluten in the diet. How do I get started? The recommended first step is a consultat

Life Expectancy

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As we mention in our resource “ Two Syndromes ,” there are four main areas that we see are affecting people with Down syndrome in a positive way. The effect has been so great in so

Longevity of a Woman With Down Syndrome

Author: Chicoine & McGuire - Mental Retardation (1997)

Abstract A case of a woman who is among the longest surviving people with Down syndrome was described. The life expectancy of persons with Down syndrome has increased more than six-fold to 56 years si

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