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For people with Down syndrome, family members, caregivers and professionals.

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Showing 73 - 96 of 123

Work and Activity Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information r

Travel Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related

Living with Dementia

Author: Down's Syndrome Scotland

This booklet for families and caregivers of individuals with Down syndrome discusses dementia. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Let's Talk about Dementia

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains dementia using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Down Syndrome and Dementia: Advances in the Field

Author: McGlinchey, McCallion, & McCarron - Current Opinion in Psychiatry (2020)

Abstract Purpose of Review:  People with Down syndrome represent the world's largest population with a genetic risk for Alzheimer's disease. This review will provide a short s

Alzheimer's Disease Video Journal Segment 7

Author: Adult Down Syndrome Center - Video Journal

The video below is the seventh segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheim

Alzheimer's Disease Video Journal Segment 6

Author: Adult Down Syndrome Center - Video Journal

The video below is the sixth segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Let's Talk about Death: A Booklet about Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Cancer Screening in Adults with Down Syndrome: A Proposal

Author: Rethore, Rousse, Satge - European Journal of Medical Genetics (2019)

Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio

Ways to Get Good Sleep

Author: Adult Down Syndrome Center

This visual shares things you can do to promote good sleep habits.

Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract: Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether

Today & Tomorrow: A Guide to Aging with Down Syndrome

Author: Canadian Down Syndrome Society - Resource

The resource linked below is a guidebook on aging from the Canadian Down Syndrome Society. While some of the information and recommendations are specific to Canada, the resource contains helpful infor

Going for a Sleep Study

Author: Children's Hospital of Wisconsin

This is a visual explanation of the process of getting a sleep study done.

Going to Get My Sleep Mask

Author: Children's Hospital of Wisconsin

This is a visual explanation of the process of getting a sleep mask.

Alzheimer's Orientation Book

Author: Adult Down Syndrome Center

An orientation book can be used for people with Alzheimer’s disease or dementia to help them remember things about their daily life.

Keeping Connected to Someone with Memory Loss

Author: All Trust Home Care

This two-page resource provides ideas for staying connected to someone who is experiencing memory loss.

Course of Alzheimer Disease in People with Down Syndrome

Author: Chicoine, Dominiak, McGuire, Bilodeau

This is a poster that describes a small chart review study on Alzheimer's disease and Down syndrome done at the Adult Down Syndrome Center.

Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

Ways to Sleep Better

Author: Adult Down Syndrome Center

This visual provides tips about how to sleep better.

Down Syndrome and Alzheimer's for Medical Professionals

Author: Brian Chicoine, MD and Dennis McGuire, PhD - Webinar

The link below takes users to a registration page to view a webinar called "Down Syndrome and Alzheimer's for Medical Professionals" that was presented by Brian Chic

Preventing Sleep Apnea

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question from an individual in Switzerland about preventing sleep apnea. Sleep apnea occurs when air is not passed normally in and out of the lungs while sleeping. There are three types

Overcoming Sleep Apnea

Author: Matthew Balog, MPH, CCSH, RPSGT - Advocate Children's Hospital

The video below is a recording of a presentation from the Adult Down Syndrome Center's Healthy Me, Healthy You, Healthy Us Conference held on April 6, 2019. The presentation features Matthew B

Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

Alzheimer's Disease in Down Syndrome Presentation (2/26/2019)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a presentation called "Alzheimer's Disease in Down Syndrome" given by Brian Chicoine, MD on February 26, 2019. He provides an overview of Al

Showing 73 - 96 of 123
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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