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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.
In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be foun
Many states and communities have lifted stay-at-home restrictions. We have received questions about whether it is safe to resume certain activities such as going to restaurants, getting haircuts, trav
UPDATED JUNE 2020 : On June 9, the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) announced that it had reached a resolution on the first federal complaints re
Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami
Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt
*Please note: this article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was expos
The link below takes you to a recording of a webinar by Brian Chicoine, MD, called "Decline in Skills and Regression in Adolescents and Adults with Down Syndrome." This webinar was p
Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Depar
This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.
The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for
In light of the COVID-19 pandemic, many healthcare organizations - including ours - are encouraging patients to avoid coming to clinics and hospitals (when possible and if appropriate). Video appointm
This handout talks about death. It describes what it is and how it might make us feel.
Many organizations are compiling COVID-19 resource lists. We have included links to some of them below. The amount of information about COVID-19 can be overwhelming and can cause anxiety and
UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information r
UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related
We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis
The video below is a recording of Brian Chicoine, MD, medical director of the Adult Down Syndrome Center, presenting on "Regression and Loss of Skills in Adolescents and Adults with Down Synd
This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).
Abstract: Purpose: An entity of regression in Down syndrome (DS) exists that affects adolescents and young adults and differs from autism spectrum disorder and Alzheimer disease. M
Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio
Abstract Objective: The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-
Abstract: Background: Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.