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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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The article linked below describes the findings of a study that evaluated Down syndrome as a risk factor for death from COVID-19 through an analysis of individual-level data in a cohort study of 8.26
Should men with Down syndrome (DS) undergo prostate specific antigen (PSA) blood testing for prostate cancer screening? The United States Preventive Services Task Force (USPSTF) recommends the followi
Abstract Background: Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the
This handout shares reminders of things we should do to stay safe and healthy during the COVID-19 pandemic.
The information below was shared on August 25, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link and/or
The information below was shared on July 23, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link . Many ind
This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.
In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be foun
Many states and communities have lifted stay-at-home restrictions. We have received questions about whether it is safe to resume certain activities such as going to restaurants, getting haircuts, trav
UPDATED JUNE 2020 : On June 9, the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) announced that it had reached a resolution on the first federal complaints re
Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami
Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt
*Please note: this article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was expos
The link below takes you to a recording of a webinar by Brian Chicoine, MD, called "Decline in Skills and Regression in Adolescents and Adults with Down Syndrome." This webinar was p
Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Depar
This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.
The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for
In light of the COVID-19 pandemic, many healthcare organizations - including ours - are encouraging patients to avoid coming to clinics and hospitals (when possible and if appropriate). Video appointm
This handout talks about death. It describes what it is and how it might make us feel.
Many organizations are compiling COVID-19 resource lists. We have included links to some of them below. The amount of information about COVID-19 can be overwhelming and can cause anxiety and
UPDATED JULY 2020: Additional information related to this topic can be found in our resource " Returning to School or Work in Fall 2020 ." UPDATED JUNE 2020: Additional information r
We received a question about low carb diets. I am looking for information on helping my 28-year-old daughter with Down syndrome lose some weight. We both started a low carb diet a couple wee
UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.