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For people with Down syndrome, family members, caregivers and professionals.

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Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle, Friedman, Olsen, & Rasmussen - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine, Roth, Chicoine, & Sulo - Intellectual and Developmental Disabilities (2015)

Abstract: This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women

Knee Pain from Patellofemoral Syndrome

Author: Julia Howell, MD - Family Medicine Resident, Advocate Lutheran General Hospital

People with Down syndrome can often have laxity, or looseness, of the ligaments that support joints. The knee is no exception. The patella, or knee cap, attaches to the muscles of the upper and lower

People First

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When we started the clinic, families spoke to us about what they needed as well as what they expected and what was most likely to help us connect with families and people with Down syndrome. One of th

Trampolines

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We periodically get asked about the use of trampolines by people with Down syndrome. Recreational use of trampolines is associated with significant injuries. The American Academy of Pediatrics recomme

Memorial/Life Celebration

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I spoke at a patient’s memorial/life celebration a few days ago and I would like to share some of my words. I would like to go back to 1954, the year Don was born. Life expectancy of a perso

Spondylolisthesis and Cervical Subluxation

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question regarding spondylolisthesis. Spondylolisthesis is a slippage of one vertebrae over another. Most commonly this refers to slippage in the lumbar (lower) part of the back. Slippag

Expectations

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As we mention in our resource on “ Two Syndromes ,” there seem to be four main reasons for the differences noted in the different generations of people with Down syndrome &ndas

Goals

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As we mention in our resource on “ Two Syndromes ,” there have been changes over time that have contributed to some of our families with younger children with Down syndrome not rel

Life Expectancy

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As we mention in our resource “ Two Syndromes ,” there are four main areas that we see are affecting people with Down syndrome in a positive way. The effect has been so great in so

Opportunities

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Over the years, some families have approached us after presentations and reported they couldn’t relate to a story or a point we made. We have found that it was typically a family of a younge

Two Syndromes

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Occasionally, after a presentation, someone will come up to Dr. McGuire or me and tell us that they can’t relate to some point that we made. After hearing this a few times, a pattern became

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