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Function of the Autonomic Nervous System in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The autonomic nervous system is the part of the nervous system that functions “automatically” without us needing to think about it. The autonomic nervous system works di

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Create a Morning or Bedtime Routine Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Use the instructions and documents below to create a visual about your morning or bedtime routine!  Instructions Print the blank morning routine template  or bedtime routine

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Sleep Apnea

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Sleep apnea is the temporary stoppage of breathing while sleeping. Sleep apnea is more common in people with Down syndrome. There are 3 types of sleep apnea. The most common type in people

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Menstruation (Period) Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period Story About How to Change My Pad   Story About How to Change My Tampon   Story About How to Change My Period Panties   Story About When to Chan

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Story About Getting My Period

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period - Darker Skin     Story About Getting My Period - Lighter Skin     Story About Getting My Period I am growing up. My body is changing.

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Story About How to Change My Tampon

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Tampon - Darker Skin     Story About How to Change My Tampon - Lighter Skin     Story About How to Change My Tampon This is how I will

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Story About When to Change My Menstrual Hygiene Product

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About When to Change My Menstrual Hygiene Product - Darker Skin     Story About When to Change My Menstrual Hygiene Product - Lighter Skin     Story About Whe

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Story About How to Change My Period Panties

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Period Panties - Darker Skin     Story About How to Change My Period Panties - Lighter Skin     Story About How to Change My Period Pan

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Story About How to Change My Pad

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Pad - Darker Skin     Story About How to Change My Pad - Lighter Skin     Story About How to Change My Pad This is how I will change my

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A Change in Behavior in a Person with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A change in behavior is often noted in people with Down syndrome (DS) who have Alzheimer’s disease (AD). For some individuals, this is a natural part of the progression of AD. However, for o

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Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome Webinar Recording (10/08/2024)

Author: Hannah Graham, MD - National Down Syndrome Society Webinar

Title:  Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome  Date:  October 8, 2024 Pre

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Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum (9/26/2024)

Author: Brian Chicoine, MD, Seth Keller, MD, and Amy Kolb-Tucker - Stanford University School of Medicine, the Stanford Alzheimer's Disease Research Center, and National Task Group for Intellectual Disabilities and Dementia Practices

On September 26, 2024, a virtual forum on Alzheimer's disease and Down syndrome was held. Title:  Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opp

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Primary Care Provider's Guide to Women's Health and Down Syndrome

Author: National Down Syndrome Society - Guidebook

Overview The Primary Care Provider's Guide to Women's Health and Down Syndrome  was developed by the National Down Syndrome Society to help physicians and other healt

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Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Hypothyroidism and Hyperthyroidism

Author: Ima V. Jonkheer, DO and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points  The thyroid gland is part of the endocrine system. It is a gland that is in the neck. Thyroid function affects or has an impact on many body functions and, therefore, abnormal thy

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When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

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Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

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Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

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When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies   When a Pet Dies Everyone and everything that is alive dies at some point. When a pet dies, e

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Reducing Risk of Getting Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Alzheimer's disease is more common in people with Down syndrome. Presently, we do not know how to prevent or cure Alzheimer's disease. We may lower the risk of developing Al

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Menopause Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below describe menopause and symptoms of menopause that women may experience. There are versions for lighter and darker skin. All menopause visuals Darker skin Lighter skin &nbs

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Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

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Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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