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For people with Down syndrome, family members, caregivers and professionals.

Duration: 30 ms, Number of Results: 127

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Fatigue

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Fatigue is a common symptom for people with and without Down syndrome. It involves feelings of extreme tiredness and lack of energy. Lifestyle choices can contribute to fatigue. There are a

Appropriate Touch Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Appropriate Touch Family Hug Hold hands Kiss Friends Side hug High five Wave Fist bump Shake hands Boyfriends and Girlfriends This type of touch is romantic. Hug Kiss Put their arms around each other

My Rules for Conversations Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

My Rules for Conversations   My Rules for Conversations I will look at the person talking. I will listen to what others are saying. I will maintain good personal space. I will speak in a loud

Conversation Skills in Romantic Relationships Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Conversation Skills in Romantic Relationships Why are conversation skills important in romantic relationships? They help us communicate! Get to know someone. Help to plan a date. Help to have conversa

Qualities of Good Friends

Author: Adult Down Syndrome Center - Visual

Qualities of Good Friends   Qualities of Good Friends Good friends... Use nice words Do kind things Listen Are trustworthy Respect and have boundaries Apologize Take turns/ compromise Say how

Possible Causes of Hair Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hair loss can be caused by many conditions. Alopecia areata and alopecia totalis are autoimmune conditions that are more common in people with Down syndrome compared to people without Down

Pain in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor

One-Way and Two-Way Relationships

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This resource explains the difference between one-way and two-way relationships (such as friendships and romantic relationships). It also provides tips for determining if a relationship is one-way or

Fainting (Syncope)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Fainting is a brief loss of consciousness. Fainting may be more common in people with Down syndrome. Fainting may be more common because of differences in body function in people with Down

How to Show I Am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without checkboxes. The version with checkboxes can be used as part of a reward system (e.g., if t

Hernias

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hernias are defects in the connective tissue of the abdominal wall which allow tissue within the abdominal cavity to protrude. Often hernias do not require treatment. They can be monitored,

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

Boundaries Visual

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Boundaries Visual   Boundaries Boundaries are a line you do not cross without permission. There are three types:    1. Personal Boundaries Personal space and what type of to

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

Urinary Incontinence

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Urinary incontinence or urinary "accidents" are more common in people with Down syndrome. There are many potential causes.  The inability to empty the bladder com

Let's Talk About Death: A Booklet About Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland - Booklet

This easy read booklet about death for individuals with Down syndrome was developed by Down's Syndrome Scotland. It can be used to support people with Down syndrome after someone close to them

Tips for Living with Housemates

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Tips for Living with Housemates     This handout describes what we can do to be good housemates. The first page is a summary. The subsequent pages share more information for each tip

Visual Schedule Apps

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visual schedules help an individual know what to expect. The schedule can be a list of activities for the entire day, only the morning or evening routine, or even the chores that need to be done. This

When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

Connective Tissue and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Connective tissue is the tissue that helps hold our bodies together. Connective tissue is different in people with Down syndrome compared to others.  People with Down syndrome have

Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

Social Media Checklists

Author: Kayla Millan, OTS, Emma Jacobs, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Social Media Checklists   The document linked above contains 3 social media checklists:  Social Media Safety - A list of steps to take to increase your safety online. Exampl

Resources on Phone, Social Media, and Internet Safety and Etiquette

Author: Adult Down Syndrome Center - Resource List

Making Good Choices on our Phones, Social Media, and the Internet     Rules for Phone Use   Rules for Social Media Use   What I Can Share on Social Media  

Making Good Choices on our Phones, Social Media, and the Internet

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Making Good Choices on our Phones, Social Media, and the Internet     Should we share a post, comment, message, picture, or video? Before sharing something, we should:  1. S

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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