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For people with Down syndrome, family members, caregivers and professionals.

Duration: 6 ms, Number of Results: 69

Showing 25 - 48 of 69

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain physical distance due to COVID-19. People throughout the country have contacted us with interest in

T21RS COVID-19 and Down Syndrome Survey

Author: Trisomy 21 Research Society - COVID-19 Taskforce

Throughout the COVID-19 pandemic, the Trisomy 21 Research Society (T21RS) has conducted an international survey of COVID-19 in Down syndrome. Caregivers and clinicians of individuals with Down syndrome who developed COVID-19 are invited to complete the survey. The T21RS has shared the findings from

COVID-19 Mortality Risk in Down Syndrome: Results from a Cohort Study of 8 Million Adults

Author: Clift et al. - Annals of Internal Medicine (2020)

The article linked below describes the findings of a study that evaluated Down syndrome as a risk factor for death from COVID-19 through an analysis of individual-level data in a cohort study of 8.26 million adults. It was published at annals.org on October 21, 2020. Full-text (no cost):  h

Clinical Characteristics of Individuals with Down Syndrome Deceased with COVID-19 in Italy - A Case Series

Author: Villani et al. - American Journal of Medical Genetics Part A (2020)

Abstract Background:  Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the present study is to assess epidemiological and clinical characteristics of individuals with DS dece

Tips for Being in Public During COVID-19

Author: Adult Down Syndrome Center

This handout shares reminders of things we should do to stay safe and healthy during the COVID-19 pandemic.

Dental Care During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource

The information below was shared on August 25, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link   and/or the Mouth Healthy website of the American Dental Association at this link . Dental disease, especial

Q&A on COVID-19 and Down Syndrome

Author: National Consortium - DSMIG-USA, Global, LuMind-IDSC, NDSC, NDSS, NTG

On March 26, 2020, a Q&A on COVID-19 and Down syndrome was completed by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congr

Types of COVID-19 Testing

Author: Adult Down Syndrome Center - Link

COVID-19 testing is a common topic of discussion these days. There are two types of testing - viral and antibody. Viral testing indicates if someone is currently infected with COVID-19. This test is usually done with a nose swab. Antibody testing indicates if a person was infected with COVID-19 in t

Returning to School or Work in Fall 2020 [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on July 23, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at  this link . Many individuals with Down syndrome and their families have asked us questions about going back to school an

How to Wash Your Hands Visual

Author: Adult Down Syndrome Center

This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.

How to Wash Your Hands Video

Author: Adult Down Syndrome Center - Video

In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be found at this link .

COVID-19 Testing Sites

Author: Adult Down Syndrome Center - Resource List

*Please note: This article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was exposed to COVID-19 previously and developed some level of immunity to COVID-19 .  We have recei

Going to Public Places During the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Many states and communities have lifted stay-at-home restrictions. We have received questions about whether it is safe to resume certain activities such as going to restaurants, getting haircuts, traveling, and more. Unfortunately, there is no "one-size-fits-all" answer. It depends

Healthy Aging Toolkit: Promoting Healthy Aging While You Are Stuck at Home

Author: Mary Stephens, MD & E. Adel Herge, OTD, OTR/L, FAOTA

This list of resources for promoting healthy aging while you are stuck at home was developed by Mary Stephens, MD and E. Adel Herge, OTD, OTR/L, FAOTA.

Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfamiliar with the individual and their health history and/or a family member or caregiver is unable to b

Helping an Individual with Down Syndrome Tolerate COVID-19 Testing

Author: Adult Down Syndrome Center - Resource List

*Please note: this article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was exposed to COVID-19 previously and developed some level of immunity to COVID-19.  A common metho

Hospital Visitor Policies During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

UPDATED JUNE 2020 : On June 9, the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) announced that it had reached a resolution on the first federal complaints regarding "no visitor" policies at hospitals, outpatient clinics, and outpatient sur

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? Many organizations - including the Adult Down Syndrome Center - have compiled lists of ideas. Please see the links below!  Adult Down Syndrome Center 21 Healthy Ways to Celebrate WDSD (they apply all year long!) -  l

Wearing Face Masks During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

The Centers for Disease Control and Prevention (CDC) recommends wearing masks in public settings, such as grocery stores and pharmacies, and when around people who do not live in your household.  The CDC provides guidance in the Masks section on their website.  A number of resource

Non-Discrimination in Medical Treatment for COVID-19

Author: Adult Down Syndrome Center - Resource List

Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Departments of the federal government and some state governments have responded by issuing bulletins and

Informacion de COVID-19 Por y Para Personas con Discapacidades (COVID-19 Information By and For People with Disabilities [Spanish])

Author: Green Mountain Self-Advocates

Informacion de COVID-19 Por y Para Personas con Discapacidades. This handout uses plain language to describe COVID-19, how it spreads, how to avoid getting it, and what to do if we get it.

Coronavirus: What Is It and What Can I Do?

Author: The Arc Maryland and Maryland Developmental Disabilities Council

This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.

COVID-19 Information By and For People with Disabilities [English]

Author: Green Mountain Self-Advocates

This handout uses plain language to describe COVID-19, how it spreads, how to avoid getting it, and what to do if we get it.

Let's Talk about the Coronavirus [COVID-19]

Author: Center for Autism and Related Disabilities (CARD) - University of Miami-Nova Southeastern University (UM-NSU)

The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for Autism and Related Disabilities (UM-NSU CARD). 

Showing 25 - 48 of 69
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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