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For people with Down syndrome, family members, caregivers and professionals.

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Showing 25 - 48 of 129

Post COVID-19 Life: What Does This Look Like and How Do We Prepare?

Author: Nicole Baumer, MD, MEd, Katie Frank, PhD, OTR/L, Lina Patel, PsyD - National Down Syndrome Society Presentation

What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2

Travel after COVID-19 Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link .  My fami

Finding a Mental Health Provider

Author: Adult Down Syndrome Center - Resource

How can I find a therapist, psychiatrist, or other mental health provider with experience working with individuals with Down syndrome? Here are a few suggestions.  Contact a Down syndrome cli

Mental Wellness in Adults with Down Syndrome (2nd Edition)

Author: Dennis McGuire, PhD and Brian Chicoine, MD - Book (2021)

Publisher's Book Description Awards for the First Edition:  2007 Independent Publisher Award: Bronze Medalist in Psychology/Mental Health Category 2006 Best Book Awards, Psychology/Me

Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a request for information on dysgerminomas in women with Down syndrome. Dysgerminomas are germ cell tumors that typically occur in the ovary. Testicular cancer is the comparable cancer in

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Mental Health Causes for Behavior Change During a Pandemic Webinar Slides (3/28/2021)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L

This document contains slides from a webinar on mental health causes for behavior change during a pandemic. It was presented by Dr. Brian Chicoine and Dr. Katie Frank.

Mental Health Causes for Behavior Change During a Pandemic Webinar Recording (3/28/2021)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on March 28, 2021 as part of the Massachusetts Down Syndrome Congress 37th Annual Virtual Confer

Tips for Being a Successful Employee

Author: Adult Down Syndrome Center

This handout shares tips for individuals with Down syndrome to be successful in the workplace.

Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 - Data from the Trisomy 21 Research Society and the UK ISARIC4C Survey

Author: Huls et al. - EClinicalMedicine (2021)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19.  Methods:&

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - EClinicalMedicine (2020)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:  

Managing Anxiety During Storms

Author: Adult Down Syndrome Center - Resource

We recently received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy

Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain

Visuals and Videos About COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Basic COVID-19 Information By and For Pe

Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a

When can I get a COVID-19 vaccine?

Author: Adult Down Syndrome Center - COVID-19

Updated:  11/3/2021 This page will no longer be updated. To find a COVID-19 vaccine near you, please see vaccines.gov . Updated:  4/15/2021 Advocate Aurora Health is now vaccinating

COVID and Down Syndrome Webinar

Author: Dr. Brian Chicoine and Dr. Andre Strydom - Matthew Foundation Webinar

On January 8, 2021, Drs. Brian Chicoine and Andre Strydom presented a webinar hosted by the Matthew Foundation in collaboration with the Stanford Down Syndrome Research Center. They provided an update

Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We h

Mental Wellness and Aging in Adults with Down Syndrome Webinar Slides (10/27/2020)

Author: Brian Chicoine, MD

This document contains the slides from a webinar on mental wellness and aging in adults with Down syndrome presented by Brian Chicoine, MD for the Down Syndrome Association of Minnesota.

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain

Mental Wellness and Aging in Adults with Down Syndrome Webinar Recording (10/27/2020)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The link below takes you to a recording of a webinar presented by Dr. Brian Chicoine called "Mental Wellness and Aging in Adults with Down Syndrome." The webinar was hosted by the Do

COVID-19 Mortality Risk in Down Syndrome: Results from a Cohort Study of 8 Million Adults

Author: Clift et al. - Annals of Internal Medicine (2020)

The article linked below describes the findings of a study that evaluated Down syndrome as a risk factor for death from COVID-19 through an analysis of individual-level data in a cohort study of 8.26

Pneumonia and Respiratory Infections in Down Syndrome: A Scoping Review of the Literature

Author: Santoro et al. - American Journal of Medical Genetics Part A (2020)

Abstract Pneumonia and respiratory infections impact infants and children with Down syndrome; pneumonia is a leading cause of mortality in adults with Down syndrome. We aimed to review the literature

Clinical Characteristics of Individuals with Down Syndrome Deceased with COVID-19 in Italy - A Case Series

Author: Villani et al. - American Journal of Medical Genetics Part A (2020)

Abstract Background:  Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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