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For people with Down syndrome, family members, caregivers and professionals.

Duration: 24 ms, Number of Results: 72

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Supporting Healthy Sexuality for Your Loved One with Down Syndrome Webinar Recording (6/15/2022)

Author: Katie Frank, PhD, OTR/L - North Carolina Down Syndrome Virtual Speaker Series

On June 15, 2022, the North Carolina Down Syndrome Alliance hosted a webinar called "Supporting Healthy Sexuality for Your Loved One with Down Syndrome" presented by Katie Frank, PhD

Bunions in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A bunion (also known as hallux valgus) is a bony projection or bump that forms at the base of the big toe. If the joint at the base of the big toe is subjected to great pressure while walking, the big

Sunscreen Use

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the summer months approach, many of us stock up on sunscreen and other products to protect our skin from the sun. While we tend to associate sun exposure with the warmer seasons, we need to prote

Recommendations for Treatment of Mild to Moderate COVID-19 Infection

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

We have only seen or heard of a few cases of severe COVID-19 infection in our patients with Down syndrome who have received COVID-19 vaccines. Our experience has been consistent with the data

Story About Grooming/Hygiene for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Body Changes for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Grooming/Hygiene for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Body Changes for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Privacy - Female

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for women.

Story About Privacy - Male

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for men.

Story About Consent

Author: Katie Frank, PhD, OTR/L

This visual handout explains what consent is and why it is important in relationships.

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

UPDATED 4/12/2022 The providers at the Adult Down Syndrome Center continue to encourage individuals with Down syndrome to be cautious in protecting themselves against COVID-19 infection. The infection

Immune Response to COVID-19 Vaccines

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We have shared both our clinical experience and studies that demonstrate clinical effectiveness and safety of COVID-19 vaccines in people with Down syndrome. However, until recently, studies have not

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical

Birth Control in Women with Down Syndrome

Author: Hannah Graham, MD - Adult Down Syndrome Center

Birth control encompasses a wide range of strategies and medications used to prevent pregnancy. Besides preventing pregnancy, some of the medications may be used to treat other common symptoms of mens

Testicular Cancer

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

While many solid tumor cancers are  less  common in people with Down syndrome compared to people without Down syndrome, testicular cancer is one type of solid tumor cancer that is&am

Wearing Face Masks During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

UPDATED 1/14/2022 : The CDC has provided updated information on what types of masks to wear and how to improve how your mask fits .  The Centers for Disease Control and Prevention (CDC) recom

Stories About Masturbation

Author: Katie Frank, PhD,OTR/L - Occupational Therapist, Adult Down Syndrome Center

The social stories below explain what masturbation is for males and females. Tap or click on the images to view the visuals. There are options for lighter and darker skin tones.  Story About

T21RS COVID-19 and Down Syndrome

Author: Trisomy 21 Research Society - COVID-19 Taskforce

The Trisomy 21 Research Society (T21RS) has developed several taskforces in response to the COVID-19 pandemic. The taskforces are studying COVID-19 infection and vaccination in people with Down syndro

DSMIG-USA IDD COVID-19 Vaccination Position Statement

Author: Down Syndrome Medical Interest Group - USA - DSMIG-USA

On December 16, 2020, the Down Syndrome Medical Interest Group - USA issued a position statement on the COVID-19 vaccine. The position statement has been updated several times, most recently on Novemb

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Recommendations for breast cancer screening have varied over time and continue to vary . Organizations have different recommendations for when women should start being screened for breast cancer and h

Down Syndrome and Hidradenitis Suppurativa

Author: The Society for Pediatric Dermatology - Patient education

Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful bumps under the skin. The handout linked below was developed by the Society for Pediatric Dermatology . Information specif

Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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