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For people with Down syndrome, family members, caregivers and professionals.

Duration: 23 ms, Number of Results: 115

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Bathing and Showering Tips

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Bathing and showering may be difficult for some individuals with Down syndrome for many reasons. No desire to bathe Too many steps to remember Not washing thoroughly Just stands in the shower (doesn&a

Appropriate Touch Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Appropriate Touch Family Hug Hold hands Kiss Friends Side hug High five Wave Fist bump Shake hands Boyfriends and Girlfriends This type of touch is romantic. Hug Kiss Put their arms around each other

My Rules for Conversations Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

My Rules for Conversations   My Rules for Conversations I will look at the person talking. I will listen to what others are saying. I will maintain good personal space. I will speak in a loud

Conversation Skills in Romantic Relationships Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Conversation Skills in Romantic Relationships Why are conversation skills important in romantic relationships? They help us communicate! Get to know someone. Help to plan a date. Help to have conversa

Qualities of Good Friends

Author: Adult Down Syndrome Center - Visual

Qualities of Good Friends   Qualities of Good Friends Good friends... Use nice words Do kind things Listen Are trustworthy Respect and have boundaries Apologize Take turns/ compromise Say how

Alopecia Areata

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Alopecia areata is a sudden loss of hair. It is an autoimmune condition in which the person's own immune system attacks the hair follicles.  Alopecia areata is patchy hair

Possible Causes of Hair Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Hair loss can be caused by many conditions. Alopecia areata and alopecia totalis are autoimmune conditions that are more common in people with Down syndrome compared to people without Down

Tips for Washing and Rinsing Hair

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Some families have shared with us that washing and rinsing hair can be a challenging task for their loved ones with Down syndrome. We have compiled a list of suggestions from families for mak

One-Way and Two-Way Relationships

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This resource explains the difference between one-way and two-way relationships (such as friendships and romantic relationships). It also provides tips for determining if a relationship is one-way or

Skin Condition Handouts

Author: The Society for Pediatric Dermatology - Resource List

The Society for Pediatric Dermatology (SPD) developed a set of handouts about skin conditions in individuals with Down syndrome. The handouts refer to infants, children, and teenagers with Do

How to Show I Am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without checkboxes. The version with checkboxes can be used as part of a reward system (e.g., if t

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

Boundaries Visual

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Boundaries Visual   Boundaries Boundaries are a line you do not cross without permission. There are three types:    1. Personal Boundaries Personal space and what type of to

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

Dry Skin in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Dry skin is more common in people with Down syndrome. Some individuals with Down syndrome find treatment challenging because of negative sensory response to creams and ointments on the skin

How to Put Your Hair into a Ponytail Video

Author: Kayla Millan, OTS and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below demonstrates one way of putting your hair into a ponytail.  See the  Self-Care and Hygiene  section of our library for additional resources.   Royal

Tips for Living with Housemates

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Tips for Living with Housemates   The handout linked above describes what we can do to be good housemates. The first page is a summary. The subsequent pages share more information fo

Visual Schedule Apps

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visual schedules help an individual know what to expect. The schedule can be a list of activities for the entire day, only the morning or evening routine, or even the chores that need to be done. This

Pneumonia in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Lungs are vital organs in the movement of oxygen into the body and the removal of carbon dioxide. Pneumonia is an infection of the lungs. Pneumonia is more common in people with Down syndro

Social Media Checklists

Author: Kayla Millan, OTS, Emma Jacobs, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Social Media Checklists   The document linked above contains 3 social media checklists:  Social Media Safety - A list of steps to take to increase your safety online. Exampl

Resources on Phone, Social Media, and Internet Safety and Etiquette

Author: Adult Down Syndrome Center - Resource List

Making Good Choices on our Phones, Social Media, and the Internet     Rules for Phone Use   Rules for Social Media Use   What I Can Share on Social Media  

Making Good Choices on our Phones, Social Media, and the Internet

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Making Good Choices on our Phones, Social Media, and the Internet     Should we share a post, comment, message, picture, or video? Before sharing something, we should:  1. S

Tips for Successful Video Calls

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Tips for Successful Video Calls     Remember:  Video calls like Zoom are public spaces. This means that other people can see or hear what we do, say, and show.  Fin

Rules for Phone Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Phone Use     Remember that phones are a public space. If you do not know the number, let the call go to voicemail. Make sure to call and text at a reasonable hour. Wait fo

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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