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Menstrual Hygiene

Author: Katie Frank, PhD, OTR/L and Hannah Graham, MD - Adult Down Syndrome Center

One topic that comes up frequently at the Adult Down Syndrome Center is menstrual hygiene. Women with Down syndrome and their caregivers often ask us about strategies to make periods easier or even to

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Adapting Activities for Older Adults with Down Syndrome Webinar Recording (3/13/2025)

Author: Katie Frank, PhD, OTR/L - Senior Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, Senior Occupational Therapist at the Adult Down Syndrome Center.  Description: As adults with Down syndrome a

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Life Expectancy, Aging, and the Down Syndrome Population

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points The life expectancy of people with Down syndrome is between 50 and 60 years of age.  The life expectancy of people with Down syndrome increased dramatically during the 20th century

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Menstruation (Period) Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period Story About How to Change My Pad   Story About How to Change My Tampon   Story About How to Change My Period Panties   Story About When to Chan

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Story About Getting My Period

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About Getting My Period - Darker Skin     Story About Getting My Period - Lighter Skin     Story About Getting My Period I am growing up. My body is changing.

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Story About How to Change My Pad

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Pad - Darker Skin     Story About How to Change My Pad - Lighter Skin     Story About How to Change My Pad This is how I will change my

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Story About How to Change My Tampon

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Tampon - Darker Skin     Story About How to Change My Tampon - Lighter Skin     Story About How to Change My Tampon This is how I will

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Story About How to Change My Period Panties

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About How to Change My Period Panties - Darker Skin     Story About How to Change My Period Panties - Lighter Skin     Story About How to Change My Period Pan

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Story About When to Change My Menstrual Hygiene Product

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Story About When to Change My Menstrual Hygiene Product - Darker Skin     Story About When to Change My Menstrual Hygiene Product - Lighter Skin     Story About Whe

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

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Healthy Aging in Adults with Down Syndrome Webinar Recording (10/24/2024)

Author: Brian Chicoine, MD and Hannah Graham, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, and Hannah Graham, MD, on October 24, 2024. Description:  Individuals with Down syndrome are living longer and hea

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Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome Webinar Recording (10/08/2024)

Author: Hannah Graham, MD - National Down Syndrome Society Webinar

Title:  Enhancing Women's Health: Key Insights from the Primary Care Provider's Guide to Women's Health and Down Syndrome  Date:  October 8, 2024 Pre

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Primary Care Provider's Guide to Women's Health and Down Syndrome

Author: National Down Syndrome Society - Guidebook

Overview The Primary Care Provider's Guide to Women's Health and Down Syndrome  was developed by the National Down Syndrome Society to help physicians and other healt

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Respiratory Syncytial Virus (RSV) Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is respiratory syncytial virus (RSV)? RSV is a virus that causes a common respiratory infection. The infection is usually mild and causes cold-like symptoms. People usually recover in a week or t

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Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Antibodies Against Measles

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is measles? Measles is a highly contagious viral infection. Due to the availability and effectiveness of vaccines, many individuals have never experienced or even seen measles in the United State

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Measles and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Measles is a highly contagious infection. It can have very serious complications. There has been a recent increase in measles infections.  Little is known about measles infection s

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Increased Need for Services and Support

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points For people with and without Down syndrome, our needs may change as we age and/or develop health issues. The change in the needs may be temporary or permanent. There are a variety of ways to

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Menopause Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below describe menopause and symptoms of menopause that women may experience. There are versions for lighter and darker skin. All menopause visuals Darker skin Lighter skin &nbs

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Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

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Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

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Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical

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Advance Directives - Forms for Illinois Residents

Author: Illinois Department of Public Health - Link

An advance directive is a written statement you prepare that expresses how you want medical decisions made in the future should you not be able to make them yourself. Illinois law allows you

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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