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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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UPDATED 1/14/2022 : The CDC has provided updated information on what types of masks to wear and how to improve how your mask fits . The Centers for Disease Control and Prevention (CDC) recom
UPDATED 1/7/2022 The providers at the Adult Down Syndrome Center encourage individuals with Down syndrome to continue to reduce their risk of severe COVID-19 infection by wearing masks, social distanc
*Please note: This article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was expos
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. I ha
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness an
Throughout the COVID-19 pandemic, the Trisomy 21 Research Society (T21RS) has conducted an international survey of COVID-19 in Down syndrome. Caregivers and clinicians of individuals with Down syndrom
Throughout the COVID-19 pandemic, a national consortium of organizations has shared a document with information on COVID-19 and Down syndrome. The organizations in the consortium are the Down
On December 16, 2020, the Down Syndrome Medical Interest Group - USA issued a position statement on the COVID-19 vaccine. The position statement has been updated several times, most recently on Novemb
This document contains the slides from Dr. Brian Chicoine's presentation on self-talk in people with Down syndrome.
The video below is a recording of a webinar presented by Brian Chicoine, MD on November 10, 2021. Dr. Chicoine is the co-founder and medical director at the Adult Down Syndrome Center. The topic of th
General Vaccine Information Individuals who are 5 years of age and older are eligible to receive COVID-19 vaccinations. The website of the Centers for Disease Control and Prevention (CDC) has r
Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws: Make sure to be hydrated ! This will help the phl
Updated November 2021 : We originally shared this resource in 2020 before COVID-19 vaccinations were available. The CDC has updated the page on celebrating holidays during the COVID-19 pandem
Abstract Adults with Down syndrome (DS) are at higher risk for severe outcomes of coronavirus disease 2019 (COVID-19) then the general population, but evidence is required to understand the risks for
We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t
Are you a person with Down syndrome and you are being prescribed a new medication? Are you assisting a person with Down syndrome with their health care and the individual is being prescribed a new med
Abstract: Objectives: To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID
These are the slides from a webinar called "The Groove in People with Down Syndrome" presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L.
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 25, 2021. Dr. Chicoine is the medical director at the Adult Down Syndrome Center and D
Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below. VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
This list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded: &nb
Abstract Individuals with Down syndrome (DS) have an increased risk for epilepsy during the whole lifespan, but especially after age 40 years. The increase in the number of individuals with DS living
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.