Section Heading Background Image

Search our Resources

For people with Down syndrome, family members, caregivers and professionals.

Duration: 22 ms, Number of Results: 107

Showing 25 - 48 of 107

Keratoconus in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about treatment of keratoconus in people with Down syndrome.  What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t

Risk Prediction of COVID-19 Related Death and Hospital Admission in Adults after COVID-19 Vaccination

Author: Hippisley-Cox et al. - The BMJ (2021)

Abstract: Objectives:  To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID

Products to Assist with Portion Control

Author: Adult Down Syndrome Center - Resource List

Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Many of these products can be found at retaile

Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a

Gout in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Gout is more common in people with Down syndrome (DS), as indicated by the study at this link and our experience at the Adult Down Syndrome Center. Gout is a type of inflammatory arthritis ca

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.

Guide to Healthy Drinking

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what drinks to consume everyday (green), sometimes (yellow), and on special occasions (red).

Guide to Healthy Eating

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what foods to eat everyday (green), sometimes (yellow), and on special occasions (red).

DSMIG Response to CDC Mask Recommendations

Author: Down Syndrome Medical Interest Group - USA - DSMIG-USA

In May 2021, the Down Syndrome Medical Interest Group shared a position statement titled "Response to Centers for Disease Control Mask Recommendations." This document shares

Healthy Pace for Eating Handout

Author: Adult Down Syndrome Center

This visual shows steps to take to have a healthy pace for eating. Take a bite, put the fork down, chew 5-10 times, swallow the food, take a small drink, pick up your fork and start all over.

Post COVID-19 Life: What Does This Look Like and How Do We Prepare?

Author: Nicole Baumer, MD, MEd, Katie Frank, PhD, OTR/L, Lina Patel, PsyD - National Down Syndrome Society Presentation

What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2

Travel after COVID-19 Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link .  My fami

Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a request for information on dysgerminomas in women with Down syndrome. Dysgerminomas are germ cell tumors that typically occur in the ovary. Testicular cancer is the comparable cancer in

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Mental Health Causes for Behavior Change During a Pandemic Webinar Recording (3/28/2021)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on March 28, 2021 as part of the Massachusetts Down Syndrome Congress 37th Annual Virtual Confer

Tips for Being a Successful Employee

Author: Adult Down Syndrome Center

This handout shares tips for individuals with Down syndrome to be successful in the workplace.

Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 - Data from the Trisomy 21 Research Society and the UK ISARIC4C Survey

Author: Huls et al. - EClinicalMedicine (2021)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19.  Methods:&

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - EClinicalMedicine (2020)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:  

Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain

Visuals and Videos About COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Basic COVID-19 Information By and For Pe

Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a

COVID and Down Syndrome Webinar

Author: Dr. Brian Chicoine and Dr. Andre Strydom - Matthew Foundation Webinar

On January 8, 2021, Drs. Brian Chicoine and Andre Strydom presented a webinar hosted by the Matthew Foundation in collaboration with the Stanford Down Syndrome Research Center. They provided an update

Types of COVID-19 Testing

Author: Adult Down Syndrome Center - Link

COVID-19 testing is a common topic of discussion these days. There are two types of testing - viral and antibody. Viral testing indicates if someone is currently infected with COVID-19. This test is u

Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We h

Showing 25 - 48 of 107
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

Close