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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
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Throughout the COVID-19 pandemic, a national consortium of organizations has shared a document with information on COVID-19 and Down syndrome. The organizations in the consortium are the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind I
General Vaccine Information Individuals who are 5 years of age and older are eligible to receive COVID-19 vaccinations. The website of the Centers for Disease Control and Prevention (CDC) has recommendations based on a person's residence, occupation, medical conditions, and other fact
Updated November 2021 : We originally shared this resource in 2020 before COVID-19 vaccinations were available. The CDC has updated the page on celebrating holidays during the COVID-19 pandemic to include information that accounts for the availability of vaccines. We have received
Abstract Adults with Down syndrome (DS) are at higher risk for severe outcomes of coronavirus disease 2019 (COVID-19) then the general population, but evidence is required to understand the risks for children with DS, which is necessary to inform COVID-19 shielding advice and vaccination priorities.
UPDATED 10/29/2021: The physicians at the Adult Down Syndrome Center shared information about COVID-19 booster shots for individuals with Down syndrome in the article linked here . 10/21/2021 : The CDC shared booster shot recommendations for the Moderna and Johnson & John
UPDATED 11/22/2021 The CDC expanded the list of people who may get a booster to include people age 18 years and older who received Pfizer-BioNTech or Moderna COVID-19 vaccines. UPDATED 10/29/2021 In October 2021, the Centers for Disease Control and Prevention (CDC) updated the re
We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of the eye) becomes thinner and more curved. This causes the cornea to become cone-like in shape and to
What do we like about our friends? As this handout shows, good friends usually use nice words, do kind things, listen, tell the truth, have boundaries, apologize, take turns, and say how they feel.
Abstract: Objectives: To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID-19 vaccination. Design: Prospective, population based cohort study using the QResearch da
Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below. VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine (Autism and Intellectual Disabilities in Pennsylvania) After Getting the COVID-19 Vaccine &a
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight. The man had gotten a COVID-19 vaccine about one month before his symptoms started. His family wonder
This handout shares information about how to write goals.
This handout explains how to and provides a template for writing a goal and making a plan to achieve the goal.
Learn why conversation skills are important in romantic relationships.
We discuss "I" statements in our social skills groups for individuals with Down syndrome. "I" statements are a way to share how we feel in a clear, calm, and respectful way. These statements can help us communicate without blaming another person or making them fee
In May 2021, the Down Syndrome Medical Interest Group shared a position statement titled "Response to Centers for Disease Control Mask Recommendations." This document shares information that people with Down syndrome and their families may want to consider in ligh
This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.
On December 16, 2020, the Down Syndrome Medical Interest Group - USA issued a position statement on the COVID-19 vaccine. The position statement was updated on January 5, 2021 and again on May 28, 2021. DSMIG-USA recommends the COVID-19 vaccine for individuals with Dow
This handout discusses when and how to end romantic relationships.
We received a question about whether the immune systems of people with Down syndrome produce antibodies in response to COVID-19 vaccines. I have shared the response I sent below. The immune system's response to any vaccine is key to preventing infections. However, some people with
What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2021. The presenters were three members of the Down Syndrome Medical Interest Group - USA (DSMIG-USA)
The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link . My family and I have been vaccinated. Is it safe to travel? We have started to get questions simi
This handout explains compromise and why it is important for healthy relationships.
We received a request for information on dysgerminomas in women with Down syndrome. Dysgerminomas are germ cell tumors that typically occur in the ovary. Testicular cancer is the comparable cancer in men with Down syndrome. Testicular cancer has been found to be more common in men with Down syndrome
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.