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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
Duration: 16 ms, Number of Results: 153
Updated November 2021 : We originally shared this resource in 2020 before COVID-19 vaccinations were available. The CDC has updated the page on celebrating holidays during the COVID-19 pandem
Abstract Adults with Down syndrome (DS) are at higher risk for severe outcomes of coronavirus disease 2019 (COVID-19) then the general population, but evidence is required to understand the risks for
We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t
What do we like about our friends? As this handout shows, good friends usually use nice words, do kind things, listen, tell the truth, have boundaries, apologize, take turns, and say how they feel.
Abstract: Objectives: To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID
Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below. VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine &a
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
This handout explains how to and provides a template for writing a goal and making a plan to achieve the goal.
This handout shares information about how to write goals.
Abstract : Down syndrome (DS) is the most common genetic cause of Alzheimer's disease (AD) due to trisomy for all or part of human chromosome 21 (Hsa21). It is also associated with other pheno
Learn why conversation skills are important in romantic relationships.
We discuss "I" statements in our social skills groups for individuals with Down syndrome. "I" statements are a way to share how we feel in a clear, calm, and respec
In May 2021, the Down Syndrome Medical Interest Group shared a position statement titled "Response to Centers for Disease Control Mask Recommendations." This document shares
This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.
This handout discusses when and how to end romantic relationships.
Abstract With improved healthcare, the Down syndrome (DS) population is both growing and aging rapidly. However, with longevity comes a very high risk of Alzheimer's disease (AD). The LIFE-DSR
What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2
The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link . My fami
This handout explains compromise and why it is important for healthy relationships.
We received a request for information on dysgerminomas in women with Down syndrome. Dysgerminomas are germ cell tumors that typically occur in the ovary. Testicular cancer is the comparable cancer in
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on March 28, 2021 as part of the Massachusetts Down Syndrome Congress 37th Annual Virtual Confer
This handout shares tips for individuals with Down syndrome to be successful in the workplace.
Abstract Background: Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:&
Abstract Background: Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.