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For people with Down syndrome, family members, caregivers and professionals.

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Attention Deficit / Hyperactivity Disorder (AD/HD)

Author: Martin Wrobel, MD - Family Medicine Resident, Advocate Lutheran General Hospital

There can be many reasons that might cause challenging behaviors in people with Down syndrome (DS), including the inability to communicate the presence of a problem being faced, underlying physical is

Steps to Accessing Adult Services and Supports

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

While special education services are an entitlement, adult services are based on eligibility and availability of funding. If you are eligible and funding is available, services can be accessed. In the

Tips for Dealing with Stress Video

Author: Adult Down Syndrome Center - Video

We  all  experience stress in our lives. What causes stress and how stress is managed varies from person-to-person. In the video below, Cindy and Nora describe stress and share tips

Promoting Mental Health Presentation (9/6/2017)

Author: Adult Down Syndrome Center Staff - Adult Down Syndrome Center

Below is a recording of a presentation given by providers at the Adult Down Syndrome Center on the topic of promoting mental health. Two videos are included below - one contains the presentations and

Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Ways to Help Support Someone with Down Syndrome Who is Grieving: Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever t

Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

I have Down Syndrome. What is it?

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

An interesting topic came up in our social skills group recently. The participants were teenagers and were all at an age when they were considering identity issues and thinking about the future. Some

Self-Talk in Adults with Down Syndrome

Author: Jacqueline Brom, MD - Family Medicine Resident, Advocate Lutheran General Hospital

I remember my first day working with Dr. Chicoine at the Adult Down Syndrome Center. I could sense the discomfort in “Aaron” as he moved his stool away from the new face and strang

Helping a Person with Down Syndrome Make Goals

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s a time of year when many people are thinking about the New Year and making New Year’s Resolutions. Many of us have goals for the year to come. How can you help someone with Do

Down Syndrome and Autism

Author: National Down Syndrome Society, Down Syndrome - Autism Connection - Document

The document linked below shares information about Down syndrome and autism. It was developed by the National Down Syndrome Society and Down Syndrome-Autism Connection .  https://www.ndss.org

10 Tips for Surviving the Holidays

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s holiday time and many people are busy decorating, baking cookies, shopping, and planning family celebrations. There are often significant changes in routine and breaks from school or da

Pica - The Basics for Caregivers

Author: Natalie Pagoria, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Introduction Pica is one of the most common eating disorders among individuals with autistic spectrum disorder and intellectual disabilities. Practically the illness is characterized by a pattern (mor

Managing Anger or Anxiety

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Have you ever wondered how to help someone with Down syndrome manage their anger or anxiety? There are a few techniques that I teach people that may help.  The first technique is called &

Transitions, Fear, and Anxiety

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

“ Life would be simpler if we could counter the fear of change just by telling people, ‘Change is inevitable, get used to it.’” ( Conquering Fear: Living Boldly

Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. In the office, via email, at conferences, and most anywhere we talk about Down syndrome, someone will ask about a change

Trichotillomania

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Trichotillomania is “hair loss from repeated urges to pull or twist the hair until it breaks off. Patients are unable to stop this behavior, even as their hair becomes thinner” ( s

Neurobehavioral Disorders in Children, Adolescents, and Young Adults with Down Syndrome

Author: Capone et al. - American Journal of Medical Genetics Part C (2006)

Abstract: The term dual-diagnosis refers to a person with mental retardation and psychiatric disorder. Most children with Down syndrome (DS) do not have a psychiatric or neurobehavioral disorder. Curr

Selective Mutism

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is selective mutism? A condition in which a person with normal verbal skills does not speak in particular settings. Are there typical settings where a person won’t talk? Often

Self-Esteem

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Self-awareness. Self-appreciation. Self-esteem. These can be difficult pursuits for people without Down syndrome and sometimes for people with Down syndrome. Some of our most challenging patients have

Celiac Disease and Obsessive Compulsive Disorder

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Can celiac disease cause obsessive compulsive disorder? This question was recently asked by a family member of a person with Down syndrome.  I have reviewed several articles and other informa

The Groove

Author: Dennis McGuire, PhD, LCSW - Director of Psychosocial Services, Adult Down Syndrome Center

One of the most interesting and consistent findings from the Adult Down Syndrome Center is the discovery that people with DS need sameness, repetition, and order in their lives. We call this tendency

Obsessional Slowness

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I reviewed a question on the Down Syndrome Medical Interest Group Listserv about a 31-year-old person with Down syndrome who was slowing down. It was reported that it could take him 45 minutes to eat

"Self-Talk" in Adults with Down Syndrome

Author: Dennis McGuire, PhD; Brian Chicoine, MD; & Elaine Greenbaum, PhD - Disability Solutions (July/August 1997)

The article below was published in the July/August 1997 edition of  Disability Solutions.  It is republished with permission. A PDF copy of the article can be downloaded at this link

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