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For people with Down syndrome, family members, caregivers and professionals.

Duration: 29 ms, Number of Results: 110

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"I" Statements

Author: Adult Down Syndrome Center

"I" statements can be used to share how you feel in a clear and non-confrontational way.

"Self-Talk" in Adults with Down Syndrome

Author: Dennis McGuire, PhD; Brian Chicoine, MD; & Elaine Greenbaum, PhD - Disability Solutions (July/August 1997)

The article below was published in the July/August 1997 edition of  Disability Solutions.  It is republished with permission. A PDF copy of the article can be downloaded at this link . Do you talk to yourself? We all do at different times and in various situations. In examining and

10 Tips for Surviving the Holidays

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It’s holiday time and many people are busy decorating, baking cookies, shopping, and planning family celebrations. There are often significant changes in routine and breaks from school or day programs. There are visits with relatives who may be unfamiliar. Siblings who have moved out retur

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? Many organizations - including the Adult Down Syndrome Center - have compiled lists of ideas. Please see the links below!  Adult Down Syndrome Center 21 Healthy Ways to Celebrate WDSD (they apply all year long!) -  l

An International Survey on the Impact of COVID-19 in Individuals with Down Syndrome

Author: Huls et al. - EClinicalMedicine (2020)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19. Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregivers 

Attention Deficit / Hyperactivity Disorder (AD/HD)

Author: Martin Wrobel, MD - Family Medicine Resident, Advocate Lutheran General Hospital

There can be many reasons that might cause challenging behaviors in people with Down syndrome (DS), including the inability to communicate the presence of a problem being faced, underlying physical issues, as well as psychological or neurological conditions. Combinations of these may account for why

Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. In the office, via email, at conferences, and most anywhere we talk about Down syndrome, someone will ask about a change in behavior. When I teach medical students and residents, I always tell them that if they are going

Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Recording (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Webinar

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrome Center and Dr. Frank is the occupational therapist at the Center. In this presentation, they defin

Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Slides (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L

This document contains the slides from the webinar on Behavior Changes in Adolescents and Adults with Down Syndrome presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020.

Body Changes When Anxious, Angry, or Stressed

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are anxious, angry, or stressed.

Body Changes When Happy

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are happy.

Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles, Takahashi, Muckerman, Nowell, Ithman - Neuropsychiatric Disease and Treatment - 2019

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-characterized cohort of seven young people with DS diagnosed with catatonia and treated between 2013

Celebrating Holidays During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource

We have received several questions about how to celebrate holidays safely during the COVID-19 pandemic. Like many of our answers, there isn't a one-size-fits-all solution. Many factors need to be considered when deciding how and with whom to celebrate. While the holidays will certainly look

Celiac Disease and Obsessive Compulsive Disorder

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Can celiac disease cause obsessive compulsive disorder? This question was recently asked by a family member of a person with Down syndrome.  I have reviewed several articles and other information on the subject. There does appear to be some limited medical study information that supports th

Clinical Characteristics of Individuals with Down Syndrome Deceased with COVID-19 in Italy - A Case Series

Author: Villani et al. - American Journal of Medical Genetics Part A (2020)

Abstract Background:  Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the present study is to assess epidemiological and clinical characteristics of individuals with DS dece

Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

Coronavirus: What Is It and What Can I Do?

Author: The Arc Maryland and Maryland Developmental Disabilities Council

This document describes coronavirus (COVID-19) and steps we can take to keep ourselves and others safe.

COVID and Down Syndrome Webinar

Author: Dr. Brian Chicoine and Dr. Andre Strydom - Matthew Foundation Webinar

On January 8, 2021, Drs. Brian Chicoine and Andre Strydom presented a webinar hosted by the Matthew Foundation in collaboration with the Stanford Down Syndrome Research Center. They provided an update on the Trisomy 21 Research Society COVID and Down Syndrome Survey and discussed the DSMIG-USA Vacci

COVID-19 & Down Syndrome Resource

Author: National Consortium - DSMIG-USA, Global, LuMind IDSC, NDSC, NDSS, NTG

On March 1, 2021, a new resource on COVID-19 and Down syndrome was completed by a national consortium of organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), Na

COVID-19 Booster Shots and Third Doses

Author: Adult Down Syndrome Center - Resource

UPDATED 9/24/2021:  The Centers for Disease Control and Prevention (CDC) updated the recommendations for booster shots of Pfizer-BioNTech's COVID-19 Vaccine. Please see this page for more information. 8/18/2021:  Many people have been contacting us about booster shots or th

COVID-19 Information By and For People with Disabilities [English]

Author: Green Mountain Self-Advocates

This handout uses plain language to describe COVID-19, how it spreads, how to avoid getting it, and what to do if we get it.

COVID-19 Mortality Risk in Down Syndrome: Results from a Cohort Study of 8 Million Adults

Author: Clift et al. - Annals of Internal Medicine (2020)

The article linked below describes the findings of a study that evaluated Down syndrome as a risk factor for death from COVID-19 through an analysis of individual-level data in a cohort study of 8.26 million adults. It was published at on October 21, 2020. Full-text (no cost):  h

COVID-19 Resources

Author: Adult Down Syndrome Center - Resource List

Many organizations are compiling COVID-19 resource lists. We have included links to some of them below.  The amount of information about COVID-19 can be overwhelming and can cause anxiety and stress. Our mental health is just as important as our physical health during this time. We recommen

COVID-19 Testing Sites

Author: Adult Down Syndrome Center - Resource List

*Please note: This article discusses viral testing used to diagnose if an individual currently has COVID-19. This article does not discuss antibody testing used to determine if an individual was exposed to COVID-19 previously and developed some level of immunity to COVID-19 .  We have recei

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.