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For people with Down syndrome, family members, caregivers and professionals.

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Pneumococcal Vaccines

Author: Brian Chicoine, MD, Erin Dominiak, MD, and Hannah Graham, MD - Adult Down Syndrome Center

What is pneumococcal disease?  Pneumococcal disease is caused by  Streptococcus pneumoniae  bacteria. It is a leading cause of vaccine-preventable illness and death in the U

How to Show I Am Calm Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals linked below explain what we can do to show that we are calm. There are versions with and without checkboxes. The version with checkboxes can be used as part of a reward system (e.g., if t

Respiratory Syncytial Virus (RSV) Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is respiratory syncytial virus (RSV)? RSV is a virus that causes a common respiratory infection. The infection is usually mild and causes cold-like symptoms. People usually recover in a week or t

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED MAY 2024 Recommendation The physicians at the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follo

Boundaries Visual

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Boundaries Visual   Boundaries Boundaries are a line you do not cross without permission. There are three types:    1. Personal Boundaries Personal space and what type of to

Antibodies Against Measles

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is measles? Measles is a highly contagious viral infection. Due to the availability and effectiveness of vaccines, many individuals have never experienced or even seen measles in the United State

Tips for Living with Housemates

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Tips for Living with Housemates     This handout describes what we can do to be good housemates. The first page is a summary. The subsequent pages share more information for each tip

Measles and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Measles is a highly contagious infection. It can have very serious complications. There has been a recent increase in measles infections.  Little is known about measles infection s

Visual Schedule Apps

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visual schedules help an individual know what to expect. The schedule can be a list of activities for the entire day, only the morning or evening routine, or even the chores that need to be done. This

Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

Social Media Checklists

Author: Kayla Millan, OTS, Emma Jacobs, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Social Media Checklists   The document linked above contains 3 social media checklists:  Social Media Safety - A list of steps to take to increase your safety online. Exampl

Resources on Phone, Social Media, and Internet Safety and Etiquette

Author: Adult Down Syndrome Center - Resource List

Making Good Choices on our Phones, Social Media, and the Internet     Rules for Phone Use   Rules for Social Media Use   What I Can Share on Social Media  

Making Good Choices on our Phones, Social Media, and the Internet

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Making Good Choices on our Phones, Social Media, and the Internet     Should we share a post, comment, message, picture, or video? Before sharing something, we should:  1. S

Tips for Successful Video Calls

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Tips for Successful Video Calls     Remember:  Video calls like Zoom are public spaces. This means that other people can see or hear what we do, say, and show.  Fin

Rules for Phone Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Phone Use     Remember that phones are a public space. If you do not know the number, let the call go to voicemail. Make sure to call and text at a reasonable hour. Wait fo

Rules for Social Media Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Social Media Use   I should have ONE account per social media platform. Account settings should be private. Location settings should be turned OFF on all apps. If I would not show i

What I Can Share on Social Media

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

What I Can Share on Social Media   Questions to ask myself before I share... Why do I want to share this? Have I already shared something today? Will people want to see my post?   Wh

Mastering Social Skills for Success in the Workplace Webinar Recording (1/10/2024)

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on January 10, 2024. Description: Although people with Down syndrome can be excellent

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical

How to Plan a Date

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

There are many things to think about when planning a date such as who you will ask, when and where you will go, how much it will cost, and how you will get to and from the date. The handouts below can

Psychogenic Non-Epileptic Seizures or Fake Seizures

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We periodically get asked questions about “fake seizures.” They have also been called “pseudo-seizures” but are now more accurately called non-epileptic seizure

Calming vs. Coping Strategies

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

What is the difference between calming and coping strategies? Many times, we use the terms "calming" and "coping" interchangeably. There is often overlap in the str

Information Forms to Share with Hospitals and Clinics (Health Passports)

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami

Keratoconus in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about treatment of keratoconus in people with Down syndrome.  What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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