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For people with Down syndrome, family members, caregivers and professionals.

Duration: 22 ms, Number of Results: 109

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When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

Adding Yogurt to Your Diet

Author: Mandy Fila, MS, RD, CDCES, LDN - Registered Dietician, Advocate Medical Group

What to look for in yogurt Yogurt can be a healthy addition to a snack or meal. Some yogurts are healthier than others. What should you look for when buying yogurt? Protein content. Yogurt made with m

Healthy Snacking

Author: Mandy Fila, MS, RD, CDCES, LDN - Registered Dietician, Advocate Medical Group

Healthy snacking tips Healthy snacks should fill us up and give us energy. We can use snacks to add more vegetables, fruits, whole grains, protein, and healthy fats to our diets. Prepare snacks using:

Healthy Snacks Visual

Author: Mandy Fila, MS, RD, CDCES, LDN - Registered Dietician, Advocate Medical Group

Healthy Snacks Visual     We can make healthy snacks with: Vegetables Fruit Whole grains Protein Healthy fats   We can measure our snacks to make sure we do not eat too much

Information on COVID-19 Booster Shots from the Adult Down Syndrome Center

Author: Brian Chicoine, MD, Erin Dominiak, MD, Hannah Graham, MD, and Farah Chaus, MD - Adult Down Syndrome Center

UPDATED January 18, 2024 The physicians of the Adult Down Syndrome Center recommend that individuals with Down syndrome ages 12 years and older who do not have a contraindication follow the recommenda

Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies     Other visuals are available in the Grief and Loss section of our Resource Library

Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts, cooking, education/learning, fitness and physical ac

Iron Deficiency and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Iron deficiency occurs when a person does not have enough iron in their body. Iron deficiency anemia is the low red blood cell count that results from that deficiency. A complete blood coun

Nutrition and Hydration Apps

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

There are numerous factors to consider when deciding what to eat and drink including nutritional content, dietary restrictions and allergies, convenience, cost, and taste preferences. The apps listed

Grief and Loss Podcast Episodes

Author: Rose Reif, LCMHC, CRC, BC-TMH - Multiple Organizations

Rose Reif, a licensed clinical mental health counselor, certified rehabilitation counselor, and qualified developmental disability and mental health professional, has been featured on two podcast epis

Gastroesophageal Reflux Disease

Author: Allison Schnitzler, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Gastroesophageal reflux disease (GERD) is also known as heartburn or reflux. GERD is common in people with Down syndrome (DS). There are a variety of things that can be done at home to redu

Celiac Disease

Author: Robert Campbell, DO and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Celiac disease is caused by a sensitivity to gluten. It is more common in people with Down syndrome. It can be diagnosed through an assessment including a history, physical, blood work, and

Weight Management in Adults with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Weight management can be challenging. It is likely that part of the reason is that there are factors for which our understanding is limited. While a great deal has been learned, more research is being

Staff Turnover

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

For people living in a group home or participating in day programs, the staff members often become like family. This is especially true if the person does not have other family involved in his life bu

Water Trackers

Author: Adult Down Syndrome Center - Visuals

The visuals below can be used to track how much water we drink each day. There are three versions: 8 oz. cups, 16 oz. water bottles, and 24 oz. water bottles. 8 oz. cups   16 oz. water bottle

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami

Weight Management Recommendations for Youth with Down Syndrome: Expert Recommendations

Author: Ptomey et al. - Frontiers in Pediatrics (2023)

Abstract Youth with Down syndrome (DS) have a higher prevalence of overweight and obesity compared to the general youth population. Due to physiological and cognitive differences observed in youth wit

Long COVID in Adults with Intellectual Disabilities

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A complication of having COVID-19 infection is a condition called long COVID (it has also been called long-haul COVID, chronic COVID, post-COVID conditions, and others). The National Task Group on Int

Diabetes and Obesity in Down Syndrome Across the Lifespan: A Retrospective Cohort Study Using U.K. Electronic Health Records

Author: Aslam et al. - Diabetes Care (2022)

Abstract Objective:  Down syndrome (DS) is the most common form of chromosomal trisomy. Genetic factors in DS may increase the risk for diabetes. This study aimed to determine whether DS is a

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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