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For people with Down syndrome, family members, caregivers and professionals.

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Duration: 8 ms, Number of Results: 101

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Cancer Screening in Adults with Down Syndrome: A Proposal

Author: Rethore et al. - European Journal of Medical Genetics (2019)

Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio

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Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether m

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Skin Care Handout

Author: Adult Down Syndrome Center

This is a visual support that is based on the Skin Care video featuring Molly and Peter.

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Clothing Match Game

Author: Adult Down Syndrome Center

This resource provides images for a game in which participants identify clothing as either appropriate or inappropriate

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Choosing Clothing - Male

Author: Adult Down Syndrome Center

This visual is intended to help individuals make appropriate clothing choices based on the season/weather.

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Choosing Clothing - Female

Author: Adult Down Syndrome Center

This visual is intended to help individuals make appropriate clothing choices.

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New Way to Learn How to Tie Shoes

Author: Katie Frank, PhD, OTR/L

This handout describes an alternative method for tying shoes that may help individuals with Down syndrome be more independent with this task.

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Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

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Exercises You Can Do at Home

Author: Adult Down Syndrome Center

This visual shows pictures of and describes exercises you can do at home without exercise equipment.

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Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

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The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

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How to Shave with an Electric Razor Video

Author: Adult Down Syndrome Center - Video

In this video, Tim and Jim discuss and demonstrate the basic steps for shaving with and cleaning an electric razor.  If this video was helpful, you may be interested in the  Activiti

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Tips for Dealing with Dry Skin Video

Author: Adult Down Syndrome Center - Video

Dry skin is more common in people with Down syndrome. In the video below, Mary and June talk about dry skin and tips for managing it. Additional resources can be found in the Skin and Hair section of

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Trisomy 21 Toolkit for Transitioning to Adult Medical Care

Author: Children's Hospital of Philadelphia - Trisomy 21 Toolkit for Transitioning to Adult Medical Care

The Trisomy 21 Toolkit for Transitioning to Adult Medical Care outlines steps individuals with Down syndrome or other intellectual disabilities can take toward building independence, planning for the

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Strength Training in Adults with Down Syndrome

Author: Maura Fitzpatrick-Kissick, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Before starting an exercise program, we recommend discussing it with your health care provider. Strength is one part of fitness that helps keep you healthy and strong. Strength can h

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Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

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Bereavement

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

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Influenza

Author: Shelly Verma, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Influenza, or the flu, is caused by the influenza virus. Flu season starts in the fall and peaks between December to March. However, it can last as late as May. There are many different strains of the

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Fit 5 Fitness Cards and Videos

Author: Special Olympics - Resource

The website linked here  contains downloadable cards and videos that feature Special Olympics athletes and provide visual demonstrations of endurance, strength, and flexibility exercises. The

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Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

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Exercise in People with Down Syndrome

Author: Kyle Yost, DO - Family Medicine Resident, Advocate Lutheran General Hospital

In the United States, obesity is on the rise. This is also true for individuals with Down syndrome. Individuals with Down syndrome are at a higher risk of becoming obese compared to the general popula

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Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

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Upper Respiratory Infection - The Common Cold

Author: Jenna Okerblom, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is it? Most commonly caused by respiratory viruses. Signs and symptoms of the common cold include fever, cough, runny nose, congestion, sore throat, headache, and aches and pains all over. Usuall

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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