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For people with Down syndrome, family members, caregivers and professionals.

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Health Care Transition Resources

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

The resources below can be used by individuals with Down syndrome, their families and caregivers, and their health care providers during the transition from pediatric to adult health care.  G

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One-Way and Two-Way Friendships

Author: Adult Down Syndrome Center

This visual compares one-way (nonreciprocal) and two-way (reciprocal) friendships. This idea can also be applied to crushes and/or romantic relationships.

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Plan for When I'm Angry

Author: Adult Down Syndrome Center

This handout can be used to make a plan for what to do when you get angry.

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Strategies to Control My Anger

Author: Adult Down Syndrome Center

This handout gives examples of things you can do when you get angry.

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Cancer Screening in Adults with Down Syndrome: A Proposal

Author: Rethore et al. - European Journal of Medical Genetics (2019)

Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio

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Body Changes When Happy

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are happy.

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Body Changes When Anxious, Angry, or Stressed

Author: Adult Down Syndrome Center

This handout describes things that our bodies may feel or do when we are anxious, angry, or stressed.

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The Feelings Volcano

Author: Adult Down Syndrome Center

This visual uses a volcano to describe how our emotions can escalate.

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Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether m

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Today & Tomorrow: A Guide to Aging with Down Syndrome

Author: Canadian Down Syndrome Society - Resource

The resource linked below is a guidebook on aging from the Canadian Down Syndrome Society. While some of the information and recommendations are specific to Canada, the resource contains helpful infor

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Personal Space

Author: Adult Down Syndrome Center

This handout discusses and gives examples of an appropriate amount of personal space.

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Making Good Choices- Female

Author: Adult Down Syndrome Center

This is a visual support about making good choices for women.

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Good Ways to Touch People at School

Author: Adult Down Syndrome Center

This handout describes and shows appropriate ways to touch people at school.

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Making Good Choices- Male

Author: Adult Down Syndrome Center

This is a visual support about making good choices for men.

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Private vs. Public Visual - Female

Author: Adult Down Syndrome Center

This handout shows the difference between private and public places and behaviors using pictures appropriate for women.

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Private vs. Public Visual - Male

Author: Adult Down Syndrome Center

This handout shows the difference between private and public places and behaviors using pictures appropriate for men.

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Appropriate Touch Handout

Author: Adult Down Syndrome Center

While we may love to hug, we know that hugging is not appropriate in all settings. This visual discusses the people in our lives who we can touch and how we can touch them appropriately.

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Conversation Rules Visual

Author: Adult Down Syndrome Center

This is a visual with tips to remember when having conversations

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Filters Visual

Author: Adult Down Syndrome Center

This visual describes filters, which help us avoid saying something that we are thinking that might be inappropriate.

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Tips for Dealing with Stress Handout

Author: Adult Down Syndrome Center

This handout gives suggestions for ways to manage stress. It corresponds to the Tips for Dealing with Stress video.

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Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

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The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Trisomy 21 Toolkit for Transitioning to Adult Medical Care

Author: Children's Hospital of Philadelphia - Trisomy 21 Toolkit for Transitioning to Adult Medical Care

The Trisomy 21 Toolkit for Transitioning to Adult Medical Care outlines steps individuals with Down syndrome or other intellectual disabilities can take toward building independence, planning for the

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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