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For people with Down syndrome, family members, caregivers and professionals.

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Showing 25 - 48 of 50

Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfamiliar with the individual and their health history and/or a family member or caregiver is unable to b

Let's Talk about the Coronavirus [COVID-19]

Author: Center for Autism and Related Disabilities (CARD) - University of Miami-Nova Southeastern University (UM-NSU)

The video below uses a drawn whiteboard technique to tell a social narrative about the novel coronavirus (COVID-19). It was developed by the University of Miami-Nova Southeastern University Center for Autism and Related Disabilities (UM-NSU CARD). 

Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 - Data from the Trisomy 21 Research Society and the UK ISARIC4C Survey

Author: Huls et al. - EClinicalMedicine (2021)

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19.  Methods:  The T21RS COVID-19 Initiative launched an international survey for clinicians or caregiver

Non-Discrimination in Medical Treatment for COVID-19

Author: Adult Down Syndrome Center - Resource List

Reports of potential discrimination in medical treatment for individuals with intellectual and developmental disabilities have caused fear, anxiety, and anger within the Down syndrome community. Departments of the federal government and some state governments have responded by issuing bulletins and

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight. The man had gotten a COVID-19 vaccine about one month before his symptoms started. His family wonder

Post COVID-19 Life: What Does This Look Like and How Do We Prepare?

Author: Nicole Baumer, MD, MEd, Katie Frank, PhD, OTR/L, Lina Patel, PsyD - National Down Syndrome Society Presentation

What does post COVID-19 life look like and how do we prepare? These questions were discussed in a presentation hosted by the National Down Syndrome Society during their virtual Adult Summit in April 2021. The presenters were three members of the Down Syndrome Medical Interest Group - USA (DSMIG-USA)

Q&A on COVID-19 and Down Syndrome

Author: National Consortium - DSMIG-USA, Global, LuMind-IDSC, NDSC, NDSS, NTG

On March 26, 2020, a Q&A on COVID-19 and Down syndrome was completed by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congr

Returning to School or Work in Fall 2020 [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on July 23, 2020. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at  this link . Many individuals with Down syndrome and their families have asked us questions about going back to school an

Risk Prediction of COVID-19 Related Death and Hospital Admission in Adults after COVID-19 Vaccination

Author: Hippisley-Cox et al. - The BMJ (2021)

Abstract: Objectives:  To derive and validate risk prediction algorithms to estimate the risk of COVID-19 related mortality and hospital admission in UK adults after one or two doses of COVID-19 vaccination. Design:  Prospective, population based cohort study using the QResearch da

Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We have learned much since then about those at higher risk of severe cases of COVID-19, and we continue

Staying Connected to Your Health Care Provider During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Advocate Aurora Health

In light of the COVID-19 pandemic, many healthcare organizations - including ours - are encouraging patients to avoid coming to clinics and hospitals (when possible and if appropriate). Video appointments are being offered as an alternative. These visits are often accessed through health care organi

T21RS COVID-19 and Down Syndrome Survey

Author: Trisomy 21 Research Society - COVID-19 Taskforce

Throughout the COVID-19 pandemic, the Trisomy 21 Research Society (T21RS) has conducted an international survey of COVID-19 in Down syndrome. Caregivers and clinicians of individuals with Down syndrome who developed COVID-19 are invited to complete the survey. The T21RS has shared the findings from

Taking Medication for Side Effects from the COVID-19 Vaccine

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

As with all vaccines, there is the potential to experience side effects after getting the COVID-19 vaccine. This is true for people with and without Down syndrome. These side effects may include pain or swelling on the arm where you got the vaccine, fever, chills, tiredness, and/or headache. These s

Tips for Being a Successful Employee

Author: Adult Down Syndrome Center

This handout shares tips for individuals with Down syndrome to be successful in the workplace.

Tips for Being in Public During COVID-19

Author: Adult Down Syndrome Center

This handout shares reminders of things we should do to stay safe and healthy during the COVID-19 pandemic.

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain physical distance due to COVID-19. People throughout the country have contacted us with interest in

Travel after COVID-19 Vaccination

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The information below was shared on April 12, 2021. For the most up-to-date information, please see the website of the Centers for Disease Control and Prevention (CDC) at this link .  My family and I have been vaccinated. Is it safe to travel?  We have started to get questions simi

Travel Considerations for People with Down Syndrome [COVID-19]

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

UPDATED APRIL 2021: Additional information related to this topic can be found in our resource " Travel after COVID-19 Vaccination ." UPDATED JUNE 2020: Additional information related to this topic can be found in our resource " Going to Public Places During the CO

Types of COVID-19 Testing

Author: Adult Down Syndrome Center - Link

COVID-19 testing is a common topic of discussion these days. There are two types of testing - viral and antibody. Viral testing indicates if someone is currently infected with COVID-19. This test is usually done with a nose swab. Antibody testing indicates if a person was infected with COVID-19 in t

Visuals and Videos About COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Basic COVID-19 Information By and For People with Disabilities  (Green Mountain Self-Advocates) Coronavirus: What Is It and What Ca

Visuals and Videos About the COVID-19 Vaccine

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about COVID-19 vaccines. We have provided links to some of them below.  VISUALS / PLAIN LANGUAGE RESOURCES Getting the COVID-19 Vaccine  (Autism and Intellectual Disabilities in Pennsylvania) After Getting the COVID-19 Vaccine &a

Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a Mask Social Story  (Autism Services, Education, Resources, and Training Collaborative)&

Wearing Face Masks During the COVID-19 Pandemic

Author: Adult Down Syndrome Center - Resource List

The Centers for Disease Control and Prevention (CDC) recommends wearing masks in public settings, such as grocery stores and pharmacies, and when around people who do not live in your household.  The CDC provides guidance in the Masks section on their website.  A number of resource

When can I get a COVID-19 vaccine?

Author: Adult Down Syndrome Center - COVID-19

Updated:  4/15/2021 Advocate Aurora Health is now vaccinating anyone in Illinois and Wisconsin who is 16 and older - whether you are a patient or not - with the Moderna and Pfizer vaccines. You can schedule in LiveWell, online, or by calling 866-443-2584. Please see this link for more infor

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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