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For people with Down syndrome, family members, caregivers and professionals.

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Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles et al. - Neuropsychiatric Disease and Treatment

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether m

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Making Good Choices Visual

Author: Adult Down Syndrome Center - Visual

Making Good Choices, female   Making Good Choices, male   Making Good Choices I make choices everyday about what I say and what I do. I can make good choices! Good choices are&nb

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Attention-Deficit/Hyperactivity Disorder in Individuals with Down Syndrome Video

Author: Joseph Pereira - Harvard Medical School, MassGeneral Hospital for Children

The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about

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Private vs. Public Visual

Author: Adult Down Syndrome Center - Visual

Private vs. Public - Female   Private vs. Public - Male   Private vs. Public Private places and actions Be in underwear Bathroom Bedroom Shower Go to bathroom Get dressed Hands in pa

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Personal Space Visual

Author: Adult Down Syndrome Center - Visual

Personal Space   Personal Space When I talk to other people, I sometimes stand too close. I need to remember to step back and leave some space between us. It is polite to respect others&#

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Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

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Tips for Dealing with Stress Visual

Author: Adult Down Syndrome Center - Visual

This visual gives examples of things we can do when we are feeling stressed to help us feel better.  Tips for Dealing with Stress If I feel stressed, I can... Close my eyes Color Take deep br

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Filters Visual

Author: Adult Down Syndrome Center - Visual

Filters Filters can keep you from saying something that you are thinking because you realize it would be inappropriate or bad timing.  Example What I think I don't like you. You are n

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Seizures in People with Down Syndrome and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about seizures in a person with Down syndrome who developed Alzheimer’s disease. The individual continued to experience seizures despite being treated with l

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The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Seizures

Author: Aashima Ghai, DO - Family Medicine, Adult Down Syndrome Center

Definition: Seizures are waves of abnormal electrical activity in the brain. The brain has multiple nerve cells that create and receive electrical impulses which help the cells communicate with each o

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Emotions Visual

Author: Adult Down Syndrome Center - Visual

Emotions Visual This visual provides examples of emotions that we might feel such as:  sad scared mad tired surprised frustrated happy excited sick content silly laughing crying smiling bored

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Strokes and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Strokes occur when the blood supply to the brain is compromised, which deprives the brain of needed oxygen and glucose. Strokes can be caused by atherosclerotic disease (a disease in which the inside

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Appropriate Touch Video

Author: Adult Down Syndrome Center - Video

While we may love to hug, we know that hugging is not appropriate in all settings. Families and caregivers of adolescents and adults with Down syndrome have expressed that it can be challenging to tea

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Startle Reflex and Myoclonus

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were asked a question about increased “startle reflex” in a 30-year-old. Please note: The information below is for educational purposes only and is not intended to serve as a su

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Mammograms

Author: Sravanthi Paritala, MD - Family Medicine, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

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Bereavement Booklet for Families

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

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Managing Emotions Visual

Author: Adult Down Syndrome Center - Visual

Managing Emotions, female   Managing Emotions, male   Managing Emotions Managing my emotions means I am in control of how I feel and what I do.  I can manage my emotions! I

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Tips for Dealing with Stress Video

Author: Adult Down Syndrome Center - Video

We  all  experience stress in our lives. What causes stress and how stress is managed varies from person-to-person. In the video below, Cindy and Nora describe stress and share tips

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Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

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Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

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Personal Space

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Our OT Katie Frank and I led another very exciting social skills group this month for patients 18 and over! We talked about a very important issue – personal space. Understanding personal sp

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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