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For people with Down syndrome, family members, caregivers and professionals.

Duration: 20 ms, Number of Results: 117

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Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

Tips for Dealing with Stress Handout

Author: Adult Down Syndrome Center

This handout gives suggestions for ways to manage stress. It corresponds to the Tips for Dealing with Stress video.

Seborrheic Dermatitis

Author: Pathik Patel, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Skin disorders are common in individuals with Down syndrome. Seborrheic dermatitis is one of the more common skin problems. It is a chronic, relapsing form of dermatitis (inflammation of the skin) cha

The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

How to Shave with an Electric Razor Video

Author: Adult Down Syndrome Center - Video

In this video, Tim and Jim discuss and demonstrate the basic steps for shaving with and cleaning an electric razor.  If this video was helpful, you may be interested in the  Activiti

Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

Alopecia

Author: Naomi Roman, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Several autoimmune diseases are more prevalent in people with Down syndrome (DS) including alopecia areata, a chronic immunological disorder that targets hair follicles and causes hair loss. When a pe

Tips for Dealing with Dry Skin Video

Author: Adult Down Syndrome Center - Video

Dry skin is more common in people with Down syndrome. In the video below, Mary and June talk about dry skin and tips for managing it. Additional resources can be found in the Skin and Hair section of

Ringworm, Athlete's Foot, and Jock Itch

Author: Asma Sayeed, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Ringworm, athlete’s foot and jock itch are fungal infections that are more common among individuals with Down syndrome. There are a variety of likely reasons for that including a tendency to

Oral Health and Hygiene Presentation (3/6/2018)

Author: Blase Brown, DDS, MA, Bridget Brown, and UIC Dental Students - Video

The video below is a recording of a presentation on Oral Health and Hygiene hosted by the Adult Down Syndrome Center in March 2018. Self-advocate Bridget Brown describes important aspects of oral hygi

Appropriate Touch Video

Author: Adult Down Syndrome Center - Video

While we may love to hug, we know that hugging is not appropriate in all settings. Families and caregivers of adolescents and adults with Down syndrome have expressed that it can be challenging to tea

Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

Bereavement

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

Tips for Dealing with Stress Video

Author: Adult Down Syndrome Center - Video

We  all  experience stress in our lives. What causes stress and how stress is managed varies from person-to-person. In the video below, Cindy and Nora describe stress and share tips

Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

Personal Space

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Our OT Katie Frank and I led another very exciting social skills group this month for patients 18 and over! We talked about a very important issue – personal space. Understanding personal sp

Reciprocal Conversations

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Our occupational therapist, Katie Frank, and I have been running some social skills groups. We have had such demand that we have started to offer two different groups, one for ages 12-17 and one for a

Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle et al. - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

Skin Care Video

Author: Adult Down Syndrome Center - Video

In this video, Molly and Peter share information about proper skin care. A corresponding visual handout can be found at this link .

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine et al. - Intellectual and Developmental Disabilities (2015)

Abstract This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women a

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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