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For people with Down syndrome, family members, caregivers and professionals.

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Recreational and Social Opportunities

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Grace O’Connor and Ann Garcia, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to the greater Chicagoland are

Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

Visual Recipes

Author: Anna Moyer - Accessible Chef

The website linked below provides visual recipes and other resources to help individuals with intellectual and developmental disabilities cook basic meals and snacks. In addition to offering a collect

Lactose Intolerance

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

People with Down syndrome can experience a variety of gastrointestinal issues. One of them is intolerance to foods containing lactose. Lactose is a sugar found in dairy products like milk and ice crea

Protein Video

Author: Adult Down Syndrome Center - Video

As described in the USDA MyPlate program   , protein is an important part of a healthy plate. This video on protein is the third part of our "Cooking Well and Feeling Well at the Adu

Dairy Video

Author: Adult Down Syndrome Center - Video

As described in the USDA  MyPlate program   , dairy is an important part of a healthy plate. This video on dairy is part of our "Cooking Well and Feeling Well at the Adult D

Serving Sizes Video

Author: Adult Down Syndrome Center - Video

Knowing how much to eat can be challenging. In this video on serving sizes, Jeff and Kurt share tips for eating appropriate amounts of different types of foods. They show how the size of our hand can

Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

Bereavement

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

Healthy Eating at Buffets Video

Author: Adult Down Syndrome Center - Video

Making healthy choices at a buffet can be challenging. In this video, Carly and Tyler explain and demonstrate helpful tips to address this challenge. The tips in this video also apply to potlucks, fam

Grains Video

Author: Adult Down Syndrome Center - Video

As described in the USDA MyPlate program   , grains are an important part of a healthy plate. This video on grains is the second part of our "Cooking Well and Feeling Well at the Adu

Fruits and Vegetables Video

Author: Adult Down Syndrome Center - Video

As described in the USDA MyPlate program   , fruits and veggies are an important part of a healthy plate. This video on fruits and veggies is the first part in our "Cooking

Cerumen Impaction (Ear Wax)

Author: Shaza Khan, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is cerumen? Cerumen impaction? Cerumen is ear wax. Cerumen impaction is the buildup of ear wax causing a blockage in your ear canal. What are the signs and symptoms of cerumen impaction? Ear full

Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Ways to Help Support Someone with Down Syndrome Who is Grieving Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever th

Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

Healthy Pace for Eating Video

Author: Adult Down Syndrome Center - Video

Eating too fast can cause us to get a stomachache, cough, or even choke. If we eat more slowly, we can enjoy our food and be healthier. This video talks about a healthy pace for eating snacks and meal

Hydration Video

Author: Adult Down Syndrome Center - Video

Drinking plenty of water helps us stay healthy. In this video, Julia talks about the importance of hydration and how to keep hydrated. 

Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle et al. - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

Healthy Food and Drink Choices Video

Author: Adult Down Syndrome Center - Video

Some food and drink choices are healthier than others. In this video, Molly and Peter help us identify the healthier choice between two food or drink options. A corresponding visual handout can be fou

Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine et al. - Intellectual and Developmental Disabilities (2015)

Abstract This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women a

Recurrent Pneumonia

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Definition of Pneumonia  (by the Mayo Clinic ) Pneumonia is an infection that inflames the air sacs in one or both lungs. The air sacs may fill with fluid or pus, causing cough with phlegm or

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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