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For people with Down syndrome, family members, caregivers and professionals.
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Recently, we were asked about emergency preparedness and safety resources for people with Down syndrome. We started to research the topic and found numerous resources that may be helpful to people wit
The resources in the Families and Caregivers section of our Resource Library are intended for a broad audience of parents, siblings, friends, and caregivers of individuals with Down
Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfami
Going up and down stairs can be challenging for some people with Down syndrome. Aging, differences in depth perception, unsteady gait, and other issues may contribute to difficulty with navigating sta
Becoming more independent is a goal for many adolescents and adults with Down syndrome. This goal may vary significantly from person to person. It can range from wanting to become more independent wit
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical
We received a question about treatment of keratoconus in people with Down syndrome. What is keratoconus? Keratoconus is an eye condition in which the cornea (the clear part in the front of t
This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!
Abstract Scant research has explored the healthcare experiences of people with Down syndrome (DS) in the United States who are Black, African American, of African descent, or of mixed race. The purpos
Abstract Individuals with Down syndrome (DS) have specific health care needs and require additional screening and surveillance for commonly associated conditions. The American Academy of Pediatrics (A
Executive functioning (or executive function) describes skills and mental processes that enables us to set goals, make plans, and manage daily life. Working memory, flexible thinking, self-control, an
Visuals can assist people with and without Down syndrome in many ways. We do not think that they are something that we "outgrow." In fact, many of us use visual supports (such as app
Click here to access the Speaker Series Overview (from the DSMIG-USA website) The Down Syndrome Medical Interest Group-USA (DSMIG-USA) Speaker Series consists of webinars and end
Brian Chicoine, MD, presented a webinar called "Bias in the Health Care System: Advocating for People with Down Syndrome" on October 19, 2022. The webinar was hosted by LuMi
"If you have met one person with Down syndrome, you have met one person with Down syndrome" is a sentiment often shared in the Down syndrome community. We certainly know this idea ap
The fact sheets linked below share estimates of the numbers of babies born and people living with Down syndrome in the United States and Europe. USA Fact Sheet Last updated Novemb
We received the following question: What vitamins and supplements would you recommend for adults 18 with Down syndrome? I have read that 2x the recommended daily dose of fish oil has been li
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
EyeWiki is an Eye Encyclopedia developed by the American Academy of Ophthalmology with content contributed by ophthalmologists (eye physicians and surgeons). There is a Down syndrome page wit
The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Hannah Graham, MD of the Adult Down Syndrome Center in Park Ridge, IL. The providers responded
While many solid tumor cancers are less common in people with Down syndrome compared to people without Down syndrome, testicular cancer is one type of solid tumor cancer that is&am
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. I ha
On December 14, 2021, the Down Syndrome Association of Delaware hosted a webinar called, "Traveling the Road Towards Independence." The presenter was Lina Patel, PsyD. View recording
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.
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