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For people with Down syndrome, family members, caregivers and professionals.

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Duration: 17 ms, Number of Results: 83

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When Staff Members Leave Story

Author: Abby Rowley, LCSW, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

When Staff Members Leave   This visual story explains why staff members may leave their job, how we might feel, and how to cope with the change. Additional visuals are available in the&nb

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Connective Tissue and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Connective tissue is the tissue that helps hold our bodies together. Connective tissue is different in people with Down syndrome compared to others.  People with Down syndrome have

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Tremors in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Tremors are repetitive involuntary movements. Tremors can be mild and cause limited disruption or more severe and restricting. There are many causes for tremors. An evaluation by a health p

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Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points  How the body manages (regulates) body temperature is different in people with Down syndrome compared to people without Down syndrome. The difference in body temperature regulation

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Pain in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points People with Down syndrome experience pain but some individuals report it less often than people without Down syndrome. There are a variety of reasons why people with Down syndrome may repor

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Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

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When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies     Other visuals are available in the Grief and Loss section of our Resource Library

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Changes in Gait (Ambulation, Walking)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess

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Reducing Risk of Getting Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Alzheimer's disease is more common in people with Down syndrome. Presently, we do not know how to prevent or cure Alzheimer's disease. We may lower the risk of developing Al

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Prostate Cancer Screening in Men with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points on Prostate Cancer Prostate cancer is one of the most common types of cancer in men. There is uncertainty about the potential benefits and risks of prostate cancer screening for men.&nb

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Breast Cancer and Breast Cancer Screening for Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Breast cancer is less common in women with Down syndrome compared to women without Down syndrome. Currently, the recommendations for breast cancer screening are the same for women with and

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Dysgerminomas in Women with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A dysgerminoma is a type of cancer that usually occurs in a woman's ovary. There is limited research on dysgerminomas in women with Down syndrome. It is not clear if dysgerminomas a

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Support Groups for Caregivers of Individuals with Down Syndrome and Alzheimer's Disease

Author: Various Organizations - Resource List

Alzheimer’s disease not only impacts the individual with the disease but also the individual’s family, friends, and caregivers. Several organizations provide in-person, online, and

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Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open (2023)

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

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Grief and Loss Podcast Episodes

Author: Rose Reif, LCMHC, CRC, BC-TMH - Multiple Organizations

Rose Reif, a licensed clinical mental health counselor, certified rehabilitation counselor, and qualified developmental disability and mental health professional, has been featured on two podcast epis

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Chronic Cough in Adults with Down Syndrome

Author: Ravi Shah, MD and Brian Chicoine, MD - Family Medicine, Advocate Lutheran General Hospital

Key Points Chronic cough is a cough that lasts more than eight weeks (four weeks in a child). There are many reasons for a chronic cough. Three common causes in people with Down syndrome (DS) include

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Staff Turnover

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

For people living in a group home or participating in day programs, the staff members often become like family. This is especially true if the person does not have other family involved in his life bu

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Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

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Alternatives to Guardianship

Author: Ann Garcia, Patient Advocate - Resource List

Families trying to decide what level of support would work best for their adult family member with Down syndrome may want to look at options besides guardianship . Individuals with Down syndrome and t

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Guardianship

Author: Ann Garcia, Patient Advocate - Resource List

Whether you decide to obtain guardianship for your child is an individual family decision that should be considered carefully. If your child is 18 years old and is unable to make decisions about finan

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Perspectives on Pain in Down Syndrome

Author: Shaikh et al. - Medicinal Research Reviews (2023)

Abstract Down syndrome (DS) or trisomy 21 is a genetic condition often accompanied by chronic pain caused by congenital abnormalities and/or conditions, such as osteoarthritis, recurrent infections, a

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Behavior Changes in Individuals with Down Syndrome Webinar Recording (2/23/2023)

Author: Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on February 23, 2023. In this webinar, the presenters define, iden

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Development of a Physical Therapy-Based Exercise Program for Adults with Down Syndrome

Author: Mann et al. - International Journal of Environmental Research and Public Health (2023)

Abstract In adults with Down syndrome, the combination of low physical activity and fitness levels and the high prevalence of musculoskeletal co-morbidities stresses the need for specialized exercise

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Mann Method PT Exercises

Author: Mann et al. - Mann Method Physical Therapy and Fitness

The Mann Method PT Exercise Program - Prescription Chart    contains a list of exercises developed for people with Down syndrome. The list includes foundational exercises, hip streng

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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