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For people with Down syndrome, family members, caregivers and professionals.

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Duration: 7 ms, Number of Results: 149

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Tips for Dealing with Stress Handout

Author: Adult Down Syndrome Center

This handout gives suggestions for ways to manage stress. It corresponds to the Tips for Dealing with Stress video.

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Recreational and Social Opportunities

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Grace O’Connor and Ann Garcia, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to the greater Chicagoland are

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Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

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Pharmacotherapy of Down Syndrome

Author: Palumbo & McDougle - Expert Opinion on Pharmacotherapy

Abstract Introduction: Comorbid psychiatric disorders are common in Down syndrome (DS). Evidence for pharmacotherapy of psychiatric co-morbidity in DS is limited.  Areas covered: This article

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The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Appropriate Touch Video

Author: Adult Down Syndrome Center - Video

While we may love to hug, we know that hugging is not appropriate in all settings. Families and caregivers of adolescents and adults with Down syndrome have expressed that it can be challenging to tea

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Mammograms

Author: Sravanthi Paritala, MD - Family Medicine Resident, Advocate Lutheran General Hospital

What is a mammogram? A mammogram is a special type of x-ray that looks for breast cancer, which is the most common cancer among women. The United States Preventive Services Task Force (USPSTF) recomme

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Bereavement

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

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Tips for Dealing with Stress Video

Author: Adult Down Syndrome Center - Video

We  all  experience stress in our lives. What causes stress and how stress is managed varies from person-to-person. In the video below, Cindy and Nora describe stress and share tips

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Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

1. Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever they are, are normal and they are not alone. It can help just t

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Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

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I have Down Syndrome. What is it?

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

An interesting topic came up in our social skills group recently. The participants were teenagers and were all at an age when they were considering identity issues and thinking about the future. Some

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Attending a Summer Camp

Author: Shane Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It may be hard to believe when many of us are still shivering in our winter coats, but summer is just around the corner! Summer is not only a time to soak up sunshine and enjoy family vacations but a

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Personal Space

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Our OT Katie Frank and I led another very exciting social skills group this month for patients 18 and over! We talked about a very important issue – personal space. Understanding personal sp

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Reciprocal Conversations

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Our occupational therapist, Katie Frank, and I have been running some social skills groups. We have had such demand that we have started to offer two different groups, one for ages 12-17 and one for a

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Pica - The Basics for Caregivers

Author: Natalie Pagoria, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Introduction Pica is one of the most common eating disorders among individuals with autistic spectrum disorder and intellectual disabilities. Practically the illness is characterized by a pattern (mor

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Managing Anger or Anxiety

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Have you ever wondered how to help someone with Down syndrome manage their anger or anxiety? There are a few techniques that I teach people that may help.  The first technique is called &

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Low Risk of Solid Tumors in Persons with Down Syndrome

Author: Hasle et al. - Genetics in Medicine (2016)

Abstract Purpose:  The aim of this study was to investigate cancer incidence in a large cohort of persons with Down syndrome.  Methods:  Down syndrome was identified from th

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Breast Cancer Screening for Women with Down Syndrome

Author: Chicoine et al. - Intellectual and Developmental Disabilities (2015)

Abstract This study examined mammogram reports of women with Down syndrome (DS) treated in the largest medical facility specifically serving adults with DS in the United States. Records of 684 women a

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Catatonia in Down Syndrome: A Treatable Cause of Regression

Author: Ghaziuddin et al. (2015) - Neuropsychiatric Disease and Treatment (2015)

Abstract Objective:  The main aim of this case series report is to alert physicians to the occurrence of catatonia in Down syndrome (DS). A second aim is to stimulate the study of regression

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Transitions, Fear, and Anxiety

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

“ Life would be simpler if we could counter the fear of change just by telling people, ‘Change is inevitable, get used to it.’” ( Conquering Fear: Living Boldly

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Trichotillomania

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is trichotillomania? MedlinePlus  describes trichotillomania as “hair loss from repeated urges to pull or twist the hair until it breaks off. People are unable to stop this beh

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Neurobehavioral Disorders in Children, Adolescents, and Young Adults with Down Syndrome

Author: Capone et al. - American Journal of Medical Genetics Part C (2006)

Abstract The term dual-diagnosis refers to a person with mental retardation and psychiatric disorder. Most children with Down syndrome (DS) do not have a psychiatric or neurobehavioral disorder. Curre

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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