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For people with Down syndrome, family members, caregivers and professionals.

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Low Carb Diets

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about low carb diets.  I am looking for information on helping my 28-year-old daughter with Down syndrome lose some weight. We both started a low carb diet a couple wee

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Tips for Eating Healthy Meals

Author: Adult Down Syndrome Center

This handout provides 6 ways to make healthier choices for meals. Eating healthy meals helps us do our best at home, school, work, and in the community.

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Staying Hydrated

Author: Adult Down Syndrome Center

This handout explains why it is important to drink water and stay hydrated.

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Drinking Water

Author: Adult Down Syndrome Center

This handout explains how much water we should drink each day.

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Let's Talk about Death: A Booklet about Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

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Cancer Screening in Adults with Down Syndrome: A Proposal

Author: Rethore et al. - European Journal of Medical Genetics (2019)

Abstract Background : The specific distribution of cancers in Down syndrome (DS) calls into question the validity of screening policies for cancer surveillance as implemented for the general populatio

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Hunger and Satiety in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Leptin is a hormone that contributes to appetite regulation and satiety. There is some data that show that individuals with Down syndrome have increased leptin levels which correlates with higher rate

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Basic Recipes Using a Microwave

Author: Kylee's Kitchen - Down Syndrome Association of Central Oklahoma

Find recipes for healthy meals that can be made using your microwave! Kylee's Kitchen is a program through the Down Syndrome Association of Central Oklahoma. Participants learn basic cooking s

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Benefits and Harms of Mammography Screening for Women with Down Syndrome

Author: Alagoz et al. - Journal of General Internal Medicine (2019)

Abstract Background:  Women with Down syndrome have a lower breast cancer risk and significantly lower life expectancies than women without Down syndrome. Therefore, it is not clear whether m

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Protein Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Protein video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Grains Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Grains video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Healthy Eating Visual

Author: Adult Down Syndrome Center

This is a visual to encourage healthy eating habits.

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Serving Sizes Handout

Author: Adult Down Syndrome Center

This is a visual support that corresponds to the video on Serving Sizes. It shows you how to estimate serving sizes using your hand as a guide.

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Healthy Eating at Buffets Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Eating at Buffets video featuring Tyler and Carly.

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Healthy Food and Drink Choices Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Choices video featuring Molly and Peter.

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Dairy Handout

Author: Adult Down Syndrome Center

This is a visual that pairs with the Dairy video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Fruits and Vegetables Handout

Author: Adult Down Syndrome Center

Visual support based on the Fruits and Vegetables video in the Cooking Well and Feeling Well at the Adult Down Syndrome Center series.

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Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

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What to Drink Instead of Pop/Soda

Author: Adult Down Syndrome Center

This visual suggests alternatives to pop/soda.

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Healthy Pace for Eating Handout

Author: Adult Down Syndrome Center

This is a visual support based on the Healthy Pace for Eating video featuring Julia.

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Recreational and Social Opportunities

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

This list of resources was compiled by Grace O’Connor and Ann Garcia, patient advocates at the Adult Down Syndrome Center. Some of these resources are specific to the greater Chicagoland are

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Alternatives to Workshops

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Some of these resources are specific to the greater Chicagoland area and/or Illinois. If you are looking for resources in another region, we recommend reaching out to a local Down syndrome parent orga

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The Pattern of Malignancies in Down Syndrome and Its Potential Context with the Immune System

Author: Satge & Seidel - Frontiers in Immunology (2018)

Abstract The immune surveillance theory of cancer posits that the body's immune system detects and destroys randomly occurring malignant cells. This theory is based on the observation of the i

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Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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