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For people with Down syndrome, family members, caregivers and professionals.
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Abstract Objective: To develop standardization for nomenclature, diagnostic work up and diagnostic criteria for cases of neurocognitive regression in Down syndrome. Background: The
Electroconvulsive therapy (ECT) is a treatment that involves sedating an individual with anesthesia and then inducing a seizure with a short electrical stimulation of the brain (more information can b
On June 15, 2022, the North Carolina Down Syndrome Alliance hosted a webinar called "Supporting Healthy Sexuality for Your Loved One with Down Syndrome" presented by Katie Frank, PhD
Abstract Background: Down syndrome regression disorder is a symptom cluster consisting of neuropsychiatric regression without cause. This study evaluated the incidence of neurodiagnostic abn
This visual handout explains what we need to do to take care of our bodies.
This visual handout explains how our bodies change as we get older.
This social story talks about privacy using pictures appropriate for men.
This social story talks about privacy using pictures appropriate for women.
This visual handout explains what consent is and why it is important in relationships.
Birth control encompasses a wide range of strategies and medications used to prevent pregnancy. Besides preventing pregnancy, some of the medications may be used to treat other common symptoms of mens
The social stories below explain what masturbation is for males and females. Tap or click on the images to view the visuals. There are options for lighter and darker skin tones. Story About
In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
Learn why conversation skills are important in romantic relationships.
This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.
Abstract Limited research exists on the effectiveness of in-person workshops to help parents talk about sexuality. This study utilizes a parallel mixed methods design to examine the impact of the&
This handout discusses when and how to end romantic relationships.
The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl
This handout explains compromise and why it is important for healthy relationships.
In collaboration with Voya Cares, the National Down Syndrome Society published a guidebook on financial wellness. Topics include the basics of financial wellness, government benefits, workplace benefi
In this visual, Cristina and Jacob explain the steps of planning a date.
Learn about the "rules" for sharing touch and affection in romantic relationships in this visual handout.
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.