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For people with Down syndrome, family members, caregivers and professionals.

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Aging and Down Syndrome: A Health & Well-Being Guidebook

Author: National Down Syndrome Society - Resource

The resource linked below is a guidebook from the National Down Syndrome Society . According to the Introduction, "Adults with Down syndrome, along with their families and caregivers, need ac

Alzheimer's Disease & Down Syndrome: A Practical Guidebook for Caregivers

Author: National Down Syndrome Society - Resource

The guidebook linked below was published by the National Down Syndrome Society "to help empower families and caregivers with knowledge about the connection between Down syndrome and Alzheimer

Alzheimer's Disease Video Journal Segment 3

Author: Adult Down Syndrome Center - Video Journal

The video below is the third segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

How I Learn

Author: GiGi's Playhouse - Video and Handout

The link below goes to a resource from Gigi's Playhouse called "How I Learn." It includes a video and handout that share information about how individuals with Down syndrome

Alzheimer's Disease Video Journal Segment 1

Author: Adult Down Syndrome Center - Video Journal

The video below is the first segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer

Alzheimer's Disease Video Journal Segment 2

Author: Adult Down Syndrome Center - Video Journal

The video below is the second segment of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheime

Clinical Aspects and Biomarkers of Alzheimer's Disease in Down Syndrome

Author: Zis & Strydom - Free Radical Biology & Medicine (September 2017)

Abstract Alzheimer's disease (AD) may affect in excess of 90% of individuals with Down syndrome (DS) after age 60, due to duplication of the APP gene in trisomy of chromosome 21, with neuropat

Dying Well with an Intellectual Disability and Dementia

Author: Service et al. - Journal of Dementia Care (2017)

Abstract:  Collaboration between palliative care, dementia care, hospice provision, and intellectual disability services is required rather than any one of these systems working in isolation.

Attending a Summer Camp

Author: Shane Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It may be hard to believe when many of us are still shivering in our winter coats, but summer is just around the corner! Summer is not only a time to soak up sunshine and enjoy family vacations but a

Aggressive Behavior and Alzheimer's Disease

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

I received the question below:  I am writing to you for advice on how to handle extreme aggressive behavior my 48-year-old son has been displaying. This has been going on now for over a year

Estimation of the Number of People with Down Syndrome in the United States

Author: de Graaf, Buckley, & Skotko - Genetics in Medicine (2016)

Abstract: Purpose:  An accurate accounting of persons with Down syndrome (DS) has remained elusive because no population-based registries exist in the United States. The purpose of this study

Morbidity and Medication in a Large Population of Individuals with Down Syndrome Compared to the General Population

Author: Alexander, Petri, Ding, Wandel, Khwaja, & Foskett - Developmental Medicine and Child Neurology (2015)

Abstract Aim: The aim of this study was to describe the incidence of morbidities and the prevalence of medical prescriptions in a large Down syndrome population. Me

Jenny's Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

Author: Karen Watchman, Irene Tuffrey-Wijne, & Sam Quinn - University of Stirling

The resource linked below is a free to download booklet and set of postcards aimed at supporting conversations about dementia with people who have an intellectual disability. https://www.learningdisab

Supporting a Happy, Healthy Adolescence for Young People with Down Syndrome and Other Intellectual Disabilities: Recommendations for Clinicians

Author: Baumer & Davidson - Current Opinion in Pediatrics (2014)

Abstract Purpose of Review:  To review clinical updates and current healthcare issues for adolescents with Down syndrome and intellectual disabilities, including behavioral, social, and emoti

Two Opposite Issues

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Two Opposite Issues All is not Down syndrome (and all people with DS are not the same) There are common characteristics of people with Down syndrome   Part 1: All is not Down syndrome A Grace

Definition of Health

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Health is a state of complete physical, mental, and social well-being and not merely the absence of disease or infirmity. (World Health Organization) At the Adult Down Syndrome Center, we strive to ad

Health Watch Table - Down Syndrome

Author: Developmental Disabilities Health Care Toolkit Advisory Committee - Toolkit for Primary Care Providers

The health watch table linked below contains recommendations for a number of areas of health for people with Down syndrome including otolaryngology, dental, cardiovascular, sleep, respiratory, gastroi

The Guide to Good Health for Teens & Adults with Down Syndrome

Author: Brian Chicoine, MD & Dennis McGuire, PhD - Book (2010)

Publisher's Book Description: The authors of the bestselling  Mental Wellness in Adults with Down Syndrome  turn their attention to the physical health of teens and adults wi

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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