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For people with Down syndrome, family members, caregivers and professionals.
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On May 18, 2022, the Down Syndrome Association of Wisconsin hosted a webinar called "Alzheimer's Disease Prevention and Healthy Aging in People with Down Syndrome," presented
Alzheimer’s disease is a form of cognitive impairment and decline in skills that is more common in people with Down syndrome. It is one, but not the only, type of cognitive impairment. In fa
Individuals with Down syndrome can use this handout before, during, and after health appointments to help them advocate for their health.
This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!
Alzheimer’s disease is a progressive neurological condition. It is a type of dementia . Alzheimer’s disease is characterized by microscopic changes in the brain that are described
Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws: Make sure to be hydrated ! This will help the phl
In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
This handout explains how to and provides a template for writing a goal and making a plan to achieve the goal.
This handout shares information about how to write goals.
Abstract : Down syndrome (DS) is the most common genetic cause of Alzheimer's disease (AD) due to trisomy for all or part of human chromosome 21 (Hsa21). It is also associated with other pheno
The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L and Laura Chicoine, BA on May 12, 2021. Dr. Frank is the occupational therapist at the Adult Down Syndrome Center and L
The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl
Abstract With improved healthcare, the Down syndrome (DS) population is both growing and aging rapidly. However, with longevity comes a very high risk of Alzheimer's disease (AD). The LIFE-DSR
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on November 10, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Synd
The video below is segment 8a of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheimer
The video below is segment 8b of our Alzheimer's Disease Video Journal, which consists of interviews with Colleen Buffington, a woman with Down syndrome who was diagnosed with Alzheim
Complete activities related to five areas of health and wellness - nutrition, hydration, sleep, exercise, and stress management.
This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.
In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be foun
Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt
The National Task Group on Intellectual and Developmental Disabilities Practices (NTG) developed a screening tool called the NTG - Early Detection Screen for Dementia (NTG-EDSD). This questionnaire wa
The link below takes you to a recording of a webinar by Brian Chicoine, MD, called "Decline in Skills and Regression in Adolescents and Adults with Down Syndrome." This webinar was p
We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.