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For people with Down syndrome, family members, caregivers and professionals.
Review our COVID-19 Resources
Duration: 6 ms, Number of Results: 107
A parent of an individual with Down syndrome asked a question about stereotypies and self-stimulatory behavior. The parent shared that the individual made noises while watching videos on their iPad an
We received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hai
Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below! There are ideas for arts and crafts , cooking , education/learning , fitness and physical
This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!
Abstract Background: The Down syndrome population has been disproportionately affected by Coronavirus 2019 (COVID-19) in terms of experiencing severe illness and death. Soc
A common and appropriate question is: Can a person be weaned off a psychotropic medication? A psychotropic medication is a medication prescribed to treat a psychological problem such as depression or
The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Hannah Graham, MD of the Adult Down Syndrome Center in Park Ridge, IL. The providers responded
Abstract Findings from a recent study of the largest documented cohort of individuals with Down syndrome (DS) in the United States described prevalence of common disease conditions and strongly sugges
Click here to access the Speaker Series Overview (from the DSMIG-USA website) The Down Syndrome Medical Interest Group-USA (DSMIG-USA ) Speaker Series consists of webinars and enduring materials desig
The link below goes to a list of podcasts hosted by Kishore Vellody, MD, medical director of the Children's Down Syndrome Center in Pittsburgh. Medical issues of children, teens, and adults wi
Dressing can be difficult for some individuals with Down syndrome, in part because bilateral coordination and dexterity skills can be challenging for many individuals with Down syndrome. I ha
The video below is a recording of a webinar presented by Brian Chicoine, MD on November 10, 2021. Dr. Chicoine is the co-founder and medical director at the Adult Down Syndrome Center. The topic of th
Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws: Make sure to be hydrated ! This will help the phl
We were sent a question about selective mutism and loss of speech. Selective mutism is defined as an anxiety condition in which a person with normal verbal skills is unable to speak in particular sett
In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res
The video below is a recording of a webinar called "Promoting Mental Health in Adolescents & Adults with Down Syndrome" presented by Brian Chicoine, MD on September 28, 2021.
Are you a person with Down syndrome and you are being prescribed a new medication? Are you assisting a person with Down syndrome with their health care and the individual is being prescribed a new med
Nearly all of us have experienced anxiety during our lives. We may feel anxious about a school exam, a new job, a dentist appointment, a disagreement with a friend, or other similar situations. This i
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 25, 2021. Dr. Chicoine is the medical director at the Adult Down Syndrome Center and D
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
This list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded: &nb
Depression is a mental health condition that is characterized by persistent feelings of sadness and/or a decreased interest in things that an individual previously enjoyed. Depression is more common i
The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl
Abstract Purpose: Given the current life expectancy and number of individuals living with Down syndrome (DS), it is important to learn common occurrences of disease conditions across the dev
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.