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For people with Down syndrome, family members, caregivers and professionals.
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Vitamin B12 deficiency is an issue that we often check for in individuals who receive medical care at the Adult Down Syndrome Center. We usually get enough vitamin B12 from the foods we eat. Vitamin B
Blood pressure and heart rates/pulses that are on the lower end of normal or even a little lower than normal are common findings in people with Down syndrome (see this article and this study ). Much o
This visual explains what happens when you get an ECG or EKG.
We were sent a question about unexplained weight loss. We are sharing some information here for general knowledge and/or information that can be used in consultation with your provider. While overweig
A common recommendation we give to individuals with Down syndrome who come to our clinic is to drink more fluids. Many people with Down syndrome we see are at least mildly dehydrated
What is the vascular system? Our vascular system includes blood vessels (including veins, arteries, and smaller blood vessels) as well as the heart. Arteries carry blood away from the heart towards th
This handout can be used to mark off how much water you drink each day.
Weight management can be challenging. It is likely that part of the reason is that there are factors for which our understanding is limited. While a great deal has been learned, more research is being
In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res
Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Many of these products can be found at retaile
We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.
Hair loss can occur for many reasons. Some of these may include: Age is a common cause not only for men but for women, too. Alopecia is an autoimmune condition (condition in which the body&a
This handout uses a stoplight to help individuals with Down syndrome know what drinks to consume everyday (green), sometimes (yellow), and on special occasions (red).
This handout uses a stoplight to help individuals with Down syndrome know what foods to eat everyday (green), sometimes (yellow), and on special occasions (red).
This visual shows steps to take to have a healthy pace for eating. Take a bite, put the fork down, chew 5-10 times, swallow the food, take a small drink, pick up your fork and start all over.
The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl
We received the following question: I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i
Abstract Purpose: To describe demographic factors and calculate prevalence of heart disease-related conditions among the adult Down syndrome (DS) sample population and to compare demographic
Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt
The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrom
The link below takes you to a recording of a webinar by Brian Chicoine, MD, called "Decline in Skills and Regression in Adolescents and Adults with Down Syndrome." This webinar was p
We received a question about low carb diets. I am looking for information on helping my 28-year-old daughter with Down syndrome lose some weight. We both started a low carb diet a couple wee
We were sent a question about the typical body temperature of people with Down syndrome and how they regulate their body temperature. Our review of the medical literature found little inform
We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis
Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.