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For people with Down syndrome, family members, caregivers and professionals.

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Supporting Healthy Sexuality for Your Loved One with Down Syndrome Webinar Recording (6/15/2022)

Author: Katie Frank, PhD, OTR/L - North Carolina Down Syndrome Virtual Speaker Series

On June 15, 2022, the North Carolina Down Syndrome Alliance hosted a webinar called "Supporting Healthy Sexuality for Your Loved One with Down Syndrome" presented by Katie Frank, PhD

Story About Body Changes for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Grooming/Hygiene for Girls

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Grooming/Hygiene for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains what we need to do to take care of our bodies.

Story About Body Changes for Boys

Author: Katie Frank, PhD, OTR/L

This visual handout explains how our bodies change as we get older.

Story About Privacy - Female

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for women.

Story About Privacy - Male

Author: Adult Down Syndrome Center

This social story talks about privacy using pictures appropriate for men.

Story About Consent

Author: Katie Frank, PhD, OTR/L

This visual handout explains what consent is and why it is important in relationships.

Vitamin B12 Deficiency

Author: Brian Chicoine, MD - Adult Down Syndrome Center

Vitamin B12 deficiency is an issue that we often check for in individuals who receive medical care at the Adult Down Syndrome Center. We usually get enough vitamin B12 from the foods we eat. Vitamin B

Birth Control in Women with Down Syndrome

Author: Hannah Graham, MD - Adult Down Syndrome Center

Birth control encompasses a wide range of strategies and medications used to prevent pregnancy. Besides preventing pregnancy, some of the medications may be used to treat other common symptoms of mens

An Introduction to Benefits: Federal and State Programs Available in Illinois

Author: Suzanne Aaron, Information & Outreach Specialist - The Arc of Illinois, Illinois Life Span Program

In January 2022, Suzanne Aaron, an information & outreach specialist from the Illinois Life Span Program of the Arc of Illinois, presented a webinar called "An Introduction t

Tips for Staying Hydrated

Author: Adult Down Syndrome Center - Resource List

A common recommendation we give to individuals with Down syndrome who come to our clinic is to drink more fluids. Many people with Down syndrome we see are at least mildly dehydrated

Stories About Masturbation

Author: Katie Frank, PhD,OTR/L - Occupational Therapist, Adult Down Syndrome Center

The social stories below explain what masturbation is for males and females. Tap or click on the images to view the visuals. There are options for lighter and darker skin tones.  Story About

Water Tracker

Author: Adult Down Syndrome Center

This handout can be used to mark off how much water you drink each day.

Weight Management in Adults with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Weight management can be challenging. It is likely that part of the reason is that there are factors for which our understanding is limited. While a great deal has been learned, more research is being

Regression in Persons with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res

Products to Assist with Portion Control

Author: Adult Down Syndrome Center - Resource List

Managing portion sizes of foods can be challenging for people with and without Down syndrome. Below are some products that may help with portion control. Many of these products can be found at retaile

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.

Guide to Healthy Drinking

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what drinks to consume everyday (green), sometimes (yellow), and on special occasions (red).

Guide to Healthy Eating

Author: Adult Down Syndrome Center

This handout uses a stoplight to help individuals with Down syndrome know what foods to eat everyday (green), sometimes (yellow), and on special occasions (red).

Conversation Skills in Romantic Relationships

Author: Adult Down Syndrome Center

Learn why conversation skills are important in romantic relationships.

Handling Rejection

Author: Adult Down Syndrome Center

This visual talks about what rejection is, gives examples of rejection, and provides ways to handle rejection.

Parents as Primary Sexuality Educators for Adolescents and Adults With Down Syndrome

Author: Frank & Sandman - American Journal of Sexuality Education (2021)

Abstract Limited research exists on the effectiveness of in-person workshops to help parents talk about sexuality. This study utilizes a parallel mixed methods design to examine the impact of the&

Breaking Up

Author: Adult Down Syndrome Center

This handout discusses when and how to end romantic relationships.

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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