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For people with Down syndrome, family members, caregivers and professionals.

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Create a Morning or Bedtime Routine Visual

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Use the instructions and documents below to create a visual about your morning or bedtime routine!  Instructions Print the blank morning routine template  or bedtime routine

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Sleep Apnea

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Sleep apnea is the temporary stoppage of breathing while sleeping. Sleep apnea is more common in people with Down syndrome. There are 3 types of sleep apnea. The most common type in people

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Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern? Webinar Recording (01/08/2025)

Author: Michele Mattox, LCSW - North Carolina Down Syndrome Virtual Speaker Series

Title:  Obsessive-Compulsive Behaviors: Promoting Independence or Cause for Concern?  Date:  January 8, 2025 Presenter:  Michele Mattox, LCSW Host Organization:&

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Regression in Down Syndrome Support Group

Author: Eileen Quinn, MD - Moderator

The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl

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Finding a Mental Health Professional

Author: Adult Down Syndrome Center - Resource

How can I find a therapist, psychiatrist, or other mental health professional with experience working with individuals with Down syndrome? Here are a few suggestions.  Contact a Down syndrome

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My Emotions Triggers

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visuals linked below can help us identify triggers for our emotions. Triggers are situations that cause us to feel certain emotions. Some triggers may make us feel happy while other triggers may m

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Observable Signs of Emotions

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visuals linked below can help us figure out what emotions we are feeling. Our bodies give us clues about what we are feeling. For example, when we feel sad, we might cry, frown, or put our head do

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Things I Can and Cannot Control Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Things I Can and Cannot Control     Things I Cannot Control/Change Other people's emotions Other people's thoughts Other people's actions Some rules at work,

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My Thoughts Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

My Thoughts Story   This visual story explains thoughts and how we can learn to manage our thoughts.    Additional resources Reframing our Thoughts Automatic Negative Though

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Promoting Mental Health Across the Lifespan in Individuals with Down Syndrome Webinar Recording (5/8/2024)

Author: Abby Rowley, LCSW and Brian Chicoine, MD - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Abby Rowley, LCSW, and Brian Chicoine, MD, on May 8, 2024.  Description:  Mental health is a critical component of overall we

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Practicing Inclusive Mental Healthcare of Individuals with Down Syndrome

Author: National Down Syndrome Society - Guidebook

The resource linked below is a guidebook from the National Down Syndrome Society (NDSS). According to the Executive Summary, "This resource is provided to equip mental health professionals wi

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Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

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Psychotherapy for Individuals with Down Syndrome

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Key Points Some people with Down syndrome benefit from psychotherapy. Therapists work with individuals with a variety of skills, needs, and goals. Psychotherapy is often one part of a treatment plan t

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Mental Health Therapy Toolkit and Guidelines

Author: Nisonger Center - The Ohio State University

The Ohio State University Nisonger Center developed several resources for adults with intellectual disabilities (ID) and professionals who treat adults with ID and mental health conditions.&a

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Regression in Persons with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

Regression in Persons with Down Syndrome: Current Consensus Update for Families   The Down Syndrome Medical Interest Group - USA (DSMIG-USA) developed a consensus update for families on Down

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Immunotherapy Responsiveness and Risk of Relapse in Down Syndrome Regression Disorder

Author: Santoro et al. - Translational Psychiatry

Abstract Down syndrome regression disorder (DSRD) is a clinical symptom cluster consisting of neuropsychiatric regression without an identifiable cause. This study evaluated the clinical effectiveness

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Evaluating Challenging Behaviors in Adults with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - DS-ASD Workgroup

Evaluating Challenging Behaviors in Adults with Down Syndrome    is a resource for health care professionals developed by the Down Syndrome-Autism Spectrum Disorder Workgroup of the

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Staff Turnover

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

For people living in a group home or participating in day programs, the staff members often become like family. This is especially true if the person does not have other family involved in his life bu

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Opposite Actions

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

When we experience an emotion, there is often a behavioral urge that comes along with it. When we feel angry, we may have the urge to yell or break things or hurt someone. When we feel sad, we may hav

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Calming vs. Coping Strategies

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

What is the difference between calming and coping strategies? Many times, we use the terms "calming" and "coping" interchangeably. There is often overlap in the str

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Reframing our Thoughts

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Reframing our thoughts is a strategy to change the way we think about a situation, person, or relationship. Sometimes, we can get stuck in thought patterns that negatively impact our mood and behavior

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Resources on Healthy Ways to Manage Stress and Strong Emotions

Author: Adult Down Syndrome Center - Resource List

Learning how to manage our stress and strong emotions in healthy ways is a lifelong process. We have compiled a list of resources below that may help people with and without Down syndrome who

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Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

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Fear of Heights

Author: Brian Chicoine, MD and Abby Rowley, LCSW - Adult Down Syndrome Center

We have seen people with Down syndrome with a variety of phobias. Concern about heights is one we see more commonly. For this fear in particular, we often ask if it is indeed a phobia or if it is caus

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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