Section Heading Background Image

Search our Resources

For people with Down syndrome, family members, caregivers and professionals.

Duration: 21 ms, Number of Results: 38

Showing 1 - 24 of 38
1 2 Next Last Page 1 of 2

Taking Charge of My Appointment

Author: Adult Down Syndrome Center

Individuals with Down syndrome can use this handout before, during, and after health appointments to help them advocate for their health.

Healthy Ways to Celebrate World Down Syndrome Day

Author: Adult Down Syndrome Center

This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!

Unexplained Weight Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about unexplained weight loss. We are sharing some information here for general knowledge and/or information that can be used in consultation with your provider. While overweig

Tips for Successful Blood Draws

Author: Katie Frank, PhD, OTR/L - Occupational therapist, Adult Down Syndrome Center

Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws:  Make sure to be hydrated ! This will help the phl

Regression in Persons with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

In October 2021, the Down Syndrome Medical Interest Group - USA (DSMIG-USA) shared a consensus update for families called "Regression in Persons with Down Syndrome." The res

Possible Causes of Regression in People with Down Syndrome during the COVID-19 Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a man with Down syndrome in his late 30s. His family shared that he developed catatonia, was hearing people speaking in his head, and lost a significant amount of weight.

Possible Causes of Hair Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Hair loss can occur for many reasons. Some of these may include:  Age is a common cause not only for men but for women, too. Alopecia is an autoimmune condition (condition in which the body&a

Template for Writing Goals

Author: Adult Down Syndrome Center

This handout explains how to and provides a template for writing a goal and making a plan to achieve the goal.

Overview of Writing Goals

Author: Adult Down Syndrome Center

This handout shares information about how to write goals.

Supporting People with Down Syndrome in Living a Healthy Lifestyle Webinar Recording (5/12/2021)

Author: Katie Frank, PhD, OTR/L and Laura Chicoine, BA - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L and Laura Chicoine, BA on May 12, 2021. Dr. Frank is the occupational therapist at the Adult Down Syndrome Center and L

Regression in Down Syndrome Support Group

Author: Eileen Quinn, MD - Moderator

The link below takes you to a closed Facebook page for families, caregivers, and professionals who support individuals with Down syndrome who have experienced or are experiencing regression. If you cl

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Healthy Lifestyle Activity Book

Author: Adult Down Syndrome Center

Complete activities related to five areas of health and wellness - nutrition, hydration, sleep, exercise, and stress management.

How to Wash Your Hands Visual

Author: Adult Down Syndrome Center

This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.

How to Wash Your Hands Video

Author: Adult Down Syndrome Center - Video

In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout can be foun

Down Syndrome Disintegrative Disorder: A Clinical Regression Syndrome of Increasing Importance

Author: Rosso et al. - Pediatrics (2020)

Abstract Down syndrome disintegrative disorder (DSDD), a developmental regression in children with Down syndrome (DS), is a clinical entity that is characterized by a loss of previously acquired adapt

Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Recording (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Webinar

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrom

Decline in Skills and Regression in Adolescents and Adults with Down Syndrome Webinar Recording (5/5/2020)

Author: Brian Chicoine, MD - NDSS Adult Summit

The link below takes you to a recording of a webinar by Brian Chicoine, MD, called "Decline in Skills and Regression in Adolescents and Adults with Down Syndrome." This webinar was p

Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about the typical body temperature of people with Down syndrome and how they regulate their body temperature.  Our review of the medical literature found little inform

Refusal to Eat Solid Foods

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis

Regression and Loss of Skills in Adolescents and Adults with Down Syndrome Presentation (2/17/2020)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of Brian Chicoine, MD, medical director of the Adult Down Syndrome Center, presenting on "Regression and Loss of Skills in Adolescents and Adults with Down Synd

Staying Hydrated

Author: Adult Down Syndrome Center

This handout explains why it is important to drink water and stay hydrated.

Drinking Water

Author: Adult Down Syndrome Center

This handout explains how much water we should drink each day.

Unexplained Regression in Down Syndrome: 35 Cases from an International Down Syndrome Database

Author: Santoro et al. - Genetics in Medicine (2019)

Abstract: Purpose:  An entity of regression in Down syndrome (DS) exists that affects adolescents and young adults and differs from autism spectrum disorder and Alzheimer disease.  M

Showing 1 - 24 of 38
1 2 Next Last Page 1 of 2
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

Close