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Tips for Living with Housemates

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Tips for Living with Housemates     This handout describes what we can do to be good housemates. The first page is a summary. The subsequent pages share more information for each tip

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Wearing My Hearing Aids Story

Author: Abby Rowley, LCSW and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Wearing My Hearing Aids   This visual story explains why it is important to wear our hearing aids and describes when to wear our hearing aids and how to take care of them.  

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Social Media Checklists

Author: Kayla Millan, OTS, Emma Jacobs, and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

Social Media Checklists   The document linked above contains 3 social media checklists:  Social Media Safety - A list of steps to take to increase your safety online. Exampl

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Resources on Phone, Social Media, and Internet Safety and Etiquette

Author: Adult Down Syndrome Center - Resource List

Making Good Choices on our Phones, Social Media, and the Internet     Rules for Phone Use   Rules for Social Media Use   What I Can Share on Social Media  

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Making Good Choices on our Phones, Social Media, and the Internet

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Making Good Choices on our Phones, Social Media, and the Internet     Should we share a post, comment, message, picture, or video? Before sharing something, we should:  1. S

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Tips for Successful Video Calls

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Tips for Successful Video Calls     Remember:  Video calls like Zoom are public spaces. This means that other people can see or hear what we do, say, and show.  Fin

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Rules for Phone Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Phone Use     Remember that phones are a public space. If you do not know the number, let the call go to voicemail. Make sure to call and text at a reasonable hour. Wait fo

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Rules for Social Media Use

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Rules for Social Media Use   I should have ONE account per social media platform. Account settings should be private. Location settings should be turned OFF on all apps. If I would not show i

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What I Can Share on Social Media

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

What I Can Share on Social Media   Questions to ask myself before I share... Why do I want to share this? Have I already shared something today? Will people want to see my post?   Wh

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Mastering Social Skills for Success in the Workplace Webinar (1/10/2024)

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on January 10, 2024. Description: Although people with Down syndrome can be excellent

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Changes in Gait (Ambulation, Walking)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points A change in gait (walking) is a change seen in many people with Down syndrome. There are many possible causes for those changes. Family or other observers can play a critical role in assess

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Getting Ear Wax Removed

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This Getting Ear Wax Removed Visual    explains what happens when we get our ears cleaned out. This visual can help individuals with Down syndrome know what to expect when g

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How to Plan a Date

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

There are many things to think about when planning a date such as who you will ask, when and where you will go, how much it will cost, and how you will get to and from the date. The handouts below can

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Regression in Persons with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - Current Consensus Update for Families

Regression in Persons with Down Syndrome: Current Consensus Update for Families   The Down Syndrome Medical Interest Group - USA (DSMIG-USA) developed a consensus update for families on Down

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Cerumen Impaction (Ear Wax Buildup)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Cerumen impaction is obstruction of the ear canal with ear wax. It is a problem that is more common in people with Down syndrome. There are treatments that can be done at home to prevent an

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Immunotherapy Responsiveness and Risk of Relapse in Down Syndrome Regression Disorder

Author: Santoro et al. - Translational Psychiatry (2023)

Abstract Down syndrome regression disorder (DSRD) is a clinical symptom cluster consisting of neuropsychiatric regression without an identifiable cause. This study evaluated the clinical effectiveness

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Hearing Loss in Adults with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Overview of hearing loss Hearing involves several steps as the sound passes from the ear to the brain. The ear is divided into three parts: the outer, middle, and inner ear. Hearing impairment, which

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Finding the Right Job for Me

Author: Katie Frank, PhD, OTR/L and Valerie Schlieder, OTD, OTR/L - Adult Down Syndrome Center

There are many things to think about when we are looking for a job that is right for us. The visual linked below describes a variety of potential jobs and job settings, provides a list of questions to

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Cholesteatomas

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What are cholesteatomas? A  cholesteatoma is a collection of skin cells that become more fibrous and build up in the middle ear (where the small bones are that are part of our hearing mechani

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Calming vs. Coping Strategies

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

What is the difference between calming and coping strategies? Many times, we use the terms "calming" and "coping" interchangeably. There is often overlap in the str

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Tips for Being a Successful Employee

Author: Adult Down Syndrome Center

This handout shares tips for individuals with Down syndrome to be successful in the workplace.

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Visual Schedule Apps

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Visual schedules help an individual know what to expect. The schedule can be a list of activities for the entire day, only the morning or evening routine, or even the chores that need to be done. This

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Alternatives to Guardianship

Author: Ann Garcia, Patient Advocate - Resource List

Families trying to decide what level of support would work best for their adult family member with Down syndrome may want to look at options besides guardianship . Individuals with Down syndrome and t

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Guardianship

Author: Ann Garcia, Patient Advocate - Resource List

Whether you decide to obtain guardianship for your child is an individual family decision that should be considered carefully. If your child is 18 years old and is unable to make decisions about finan

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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