Section Heading Background Image

Search our Resources

For people with Down syndrome, family members, caregivers and professionals.

Duration: 24 ms, Number of Results: 31

Showing 1 - 24 of 31
1 2 Next Last Page 1 of 2

Irritable Bowel Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Irritable bowel syndrome (IBS) is a health issue in the intestines (bowels). It is not clear how common it is in people with Down syndrome (DS).  However, we suspect that IBS is more common i

Unexplained Weight Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about unexplained weight loss. We are sharing some information here for general knowledge and/or information that can be used in consultation with your provider. While overweig

Prevalence of Infectious Diseases Among 6078 Individuals with Down Syndrome in the United States

Author: Fitzpatrick et al. - Journal of Patient-Centered Research and Reviews

Abstract A recent disease prevalence study of the largest documented Down syndrome (DS) cohort in the United States strongly suggested significant disparity in general infectious disease conditions am

Swallowing Problems (Dysphagia)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Swallowing problems (dysphagia) are common in people with Down syndrome (DS). In our large cohort study that reviewed health data from people cared for within Advocate Health, swallowing problems were

Possible Causes of Hair Loss

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Hair loss can occur for many reasons. Some of these may include:  Age is a common cause not only for men but for women, too. Alopecia is an autoimmune condition (condition in which the body&a

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Use of Probiotics by People with Down Syndrome

Author: Adult Down Syndrome Center - Resource

What are probiotics? Probiotics are foods or supplements that contain live microorganisms (e.g., bacteria). Foods with labels that say "live and active cultures" contain probiotics.

Financial Wellness: A Guide for Individuals with Disabilities, their Families and Caregivers

Author: National Down Syndrome Society - In collaboration with Voya Cares

In collaboration with Voya Cares, the National Down Syndrome Society published a guidebook on financial wellness. Topics include the basics of financial wellness, government benefits, workplace benefi

Liver Fibrosis

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Fibrosis of the liver can be thought of as a "scar" in the liver that results from chronic liver injury. It is similar to scarring that may form on the skin or in the lung or other o

Behavior Changes in Adolescents and Adults with Down Syndrome Webinar Recording (4/28/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Webinar

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on April 28, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrom

Temperature Regulation in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about the typical body temperature of people with Down syndrome and how they regulate their body temperature.  Our review of the medical literature found little inform

Refusal to Eat Solid Foods

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question about a person with Down syndrome who was refusing to eat solids. He was found to have dental disease. He needed several fillings and had a couple baby teeth removed. The dentis

Treating Gastroesophageal Reflux Disease with Surgery

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were asked about surgical options for treating gastroesophageal reflux disease (GERD). GERD occurs when stomach contents, including acid, go "backwards" from the stomach up into t

Colon Cancer Screening for People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Is colon cancer screening recommended for people with Down syndrome? Please note that this handout discusses screening colonoscopies (i.e. colonoscopies performed to identify pre-symptomatic or unreco

Chronic Cough in Adults with Down Syndrome

Author: Ravi Shah, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Definition: Chronic cough is defined as any cough that lasts greater than three weeks. It is a common condition in adults with Down syndrome. Reasons that chronic cough have a higher frequency in peop

Steps to Accessing Adult Services and Supports

Author: Grace O’Connor and Ann Garcia - Patient Advocates, Adult Down Syndrome Center

While special education services are an entitlement, adult services are based on eligibility and availability of funding. If you are eligible and funding is available, services can be accessed. In the

Lactose Intolerance

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

People with Down syndrome can experience a variety of gastrointestinal issues. One of them is intolerance to foods containing lactose. Lactose is a sugar found in dairy products like milk and ice crea

The Role of Polypharmacy - General Aging in Intellectual and Developmental Disabilities

Author: Julie A. Moran, DO - Geriatrician, Aging and Intellectual/Developmental Disabilities Specialist

The webinar recording below was shared by the Center for Developmental Disabilities Evaluation and Research (CDDER) and the Massachusetts Department of Developmental Services (DDS). The presentation s

Celiac Disease

Author: Robert Campbell, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is celiac disease? Celiac disease is characterized by inflammation of the lining of the small intestine that occurs when the intestine is exposed to gluten (see more on gluten below). Specificall

Constipation in Down Syndrome

Author: Samantha Ghanayem-Bouikidis, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Constipation is a common problem in people with Down syndrome as well as the general population. Studies show that chronic constipation affects between 2 and 27% of the general population. It is thoug

Influenza

Author: Shelly Verma, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Influenza, or the flu, is caused by the influenza virus. Flu season starts in the fall and peaks between December to March. However, it can last as late as May. There are many different strains of the

Gastroesophageal Reflux Disease

Author: Allison Schnitzler, MD - Family Medicine Resident, Advocate Lutheran General Hospital

Gastroesophageal Reflux Disease (GERD), also known as acid reflux and heartburn, is common among people both with and without Down syndrome. One study showed that as many as 44% (almost one half!) of

Self-Reported Presence and Experience of Pain in Adults with Down Syndrome

Author: de Knegt et al. - Pain Medicine (2017)

Abstract: Objective: The aim was to examine whether the presence of pain (based on physical conditions and participants’ report) and self-reported pain experience in adults with Down syndrom

Upper Respiratory Infection - The Common Cold

Author: Jenna Okerblom, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is it? Most commonly caused by respiratory viruses. Signs and symptoms of the common cold include fever, cough, runny nose, congestion, sore throat, headache, and aches and pains all over. Usuall

Showing 1 - 24 of 31
1 2 Next Last Page 1 of 2
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

Close