Section Heading Background Image

Search our Resources

For people with Down syndrome, family members, caregivers and professionals.

Duration: 19 ms, Number of Results: 43

Showing 1 - 24 of 43
1 2 Next Last Page 1 of 2

Activities You Can Do at Home

Author: Adult Down Syndrome Center - Resource List

Are you looking for suggestions of activities you can do at home? We have compiled a list of some ideas below!  There are ideas for arts and crafts , cooking , education/learning , fitness and physical activity , and games .        Arts and Crafts &nb

Self-Talk in People with Down Syndrome Webinar Slides (11/10/2021)

Author: Brian Chicoine, MD

This document contains the slides from Dr. Brian Chicoine's presentation on self-talk in people with Down syndrome.

Self-Talk in People with Down Syndrome Webinar Recording (11/10/2021)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD on November 10, 2021. Dr. Chicoine is the co-founder and medical director at the Adult Down Syndrome Center. The topic of the webinar was self-talk. Self-talk is a conversation with oneself or imaginary friends. It can be a

Tips for Successful Blood Draws

Author: Katie Frank, PhD, OTR/L - Occupational therapist, Adult Down Syndrome Center

Do you or does a family member or friend with Down syndrome dread getting blood drawn? Here are some tips to help with blood draws:  Make sure to be hydrated ! This will help the phlebotomist find the vein. Sensory strategies prior to a blood draw may help calm anxiety. Propriocept

Questions to Ask When Prescribed a New Medication

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Are you a person with Down syndrome and you are being prescribed a new medication? Are you assisting a person with Down syndrome with their health care and the individual is being prescribed a new medication? What are some of the things that should be considered? Some general questions to ask before

The Groove in People with Down Syndrome Webinar Slides (8/25/2021)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L

These are the slides from a webinar called "The Groove in People with Down Syndrome" presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L.

The Groove in People with Down Syndrome Webinar Recording (8/25/2021)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on August 25, 2021. Dr. Chicoine is the medical director at the Adult Down Syndrome Center and Dr. Frank is the occupational therapist at the Center. In this presentation, they discuss the &qu

Respite Organizations and Providers

Author: Ann Garcia - Patient Advocate, Adult Down Syndrome Center

This list below includes information about respite organizations and providers in the greater Chicagoland area and/or Illinois. The types of respite provided are also included and color-coded:   In-Home Respite Residential Respite Group Respite Voucher Respite An overview of respite care an

Prevalence of Common Disease Conditions in a Large Cohort of Individuals with Down Syndrome in the United States

Author: Chicoine et al. - Journal of Patient-Centered Research and Reviews (2021)

Abstract Purpose:  Given the current life expectancy and number of individuals living with Down syndrome (DS), it is important to learn common occurrences of disease conditions across the developmental lifespan. This study analyzed data from a large cohort of individuals with DS in an effor

Mental Wellness in Adults with Down Syndrome (2nd Edition)

Author: Dennis McGuire, PhD and Brian Chicoine, MD - Book (2021)

Publisher's Book Description Awards for the First Edition:  2007 Independent Publisher Award: Bronze Medalist in Psychology/Mental Health Category 2006 Best Book Awards, Psychology/Mental Health Finalist 2006 ForeWord Magazine's Book of the Year Award: Finalist in Psychology

ADSC Patient Questionnaires

Author: Adult Down Syndrome Center - Forms

New and returning patients to the Adult Down Syndrome Center are asked to fill out a health questionnaire to share important information with their health care provider and help guide their appointment. These questions may be helpful for individuals who are not patients at the Center to review prior

Specialty Clinics for Adults with Down Syndrome: A Clinic Survey

Author: Santoro et al. - American Journal of Medical Genetics: Part A (2021)

Abstract Specialty centers improve care for patients with Down syndrome. The cohort of adults with Down syndrome is increasing, but the capacity for specialty centers to meet their medical care needs is unknown. Electronic survey of staff of specialty clinics for adults with Down syndrome was conduc

Managing Anxiety During Storms

Author: Adult Down Syndrome Center - Resource

We recently received a question from a family member of an individual with Down syndrome who is anxious and fearful of bad weather, particularly thunderstorms. Thunder, lightning, strong winds, heavy rain, hail, and other weather phenomena can be a source of anxiety and fear for some individuals wit

Addressing Common Health Conditions in Adults with Down Syndrome Webinar Slides (2/10/2021)

Author: Brian Chicoine, MD

This document contains the slides from a webinar on Common Health Conditions in Adults with Down Syndrome presented by Brian, Chicoine, MD on February 10, 2021.

Addressing Common Health Conditions in Adults with Down Syndrome Webinar Recording (2/10/2021)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD on February 10, 2021. Dr. Chicoine is the co-founder and medical director of the Adult Down Syndrome Center. In this presentation, he identifies common health conditions in adults with Down syndrome and discusses presentatio

Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain physical distance due to COVID-19. People throughout the country have contacted us with interest in

What is Occupational Therapy?

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Occupational therapy is a health profession concerned with how people function and perform meaningful activities in their respective roles. "Occupation" is any activity in which one engages throughout the day. Occupational therapists (OTs) can help a person perform expected, needed

Down Syndrome: Review Article

Author: Marilyn Bull, MD - The New England Journal of Medicine (2020)

Abstract Down syndrome, also called Down’s syndrome (DS), is the most common chromosomal condition associated with intellectual disability and is characterized by a variety of additional clinical findings. It occurs in approximately 1 of 800 births worldwide. In the United States, DS accou

Information Forms to Share with Hospitals and Clinics

Author: Adult Down Syndrome Center - Resources

Visiting a hospital or clinic can be a stressful or frightening experience for some individuals with Down syndrome. The stress and fear can be increased if the healthcare providers are unfamiliar with the individual and their health history and/or a family member or caregiver is unable to b

Challenges of Pediatric Disease in Adulthood

Author: Baumgardner & Chicoine - Journal of Patient-Centered Research and Reviews (2020)

Abstract: Some chronic diseases - such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the  Journal of Patient-Centered Research and Reviews  - are diagnosed in childhood but become more symptomatic in adulthood. In t

Healthy Ways to Celebrate World Down Syndrome Day

Author: Adult Down Syndrome Center

This handout lists 21 activities you can do to promote your physical, mental, and social health on World Down Syndrome Day!

Down Syndrome

Author: Antonarakis et al. - Nature Reviews: Disease Primers (2020)

Abstract Trisomy 21, the presence of a supernumerary chromosome 21, results in a collection of clinical features commonly known as Down syndrome (DS). DS is among the most genetically complex of the conditions that are compatible with human survival post-term, and the most frequent survivable autoso

Overview and Types of Respite

Author: Ann Garcia and Grace O'Connor - Patient Advocates, Adult Down Syndrome Center

Respite care is short-term relief for primary caregivers. It can be used for as short as a few hours to as long as several weeks. Respite care can be provided in a variety of settings including the individual's home, an adult day care center, or residential facility. There are different type

Down Syndrome Medical Care Centers

Author: Global Down Syndrome Foundation - Resource

The Global Down Syndrome Foundation has compiled a list of medical care centers that specialize in treating patients with Down syndrome in the United States. It is organized by state. The list can be accessed at the link below.  https://www.globaldownsyndrome.org/research-medical-care/medic

Showing 1 - 24 of 43
1 2 Next Last Page 1 of 2
 

Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

Close