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For people with Down syndrome, family members, caregivers and professionals.

Duration: 8 ms, Number of Results: 96

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Pneumonia in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Lungs are vital organs in the movement of oxygen into the body and the removal of carbon dioxide. Pneumonia is an infection of the lungs. Pneumonia is more common in people with Down syndro

Coping with Grief Story

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The visual below explains how we might feel when someone we care about dies and shares things we can do to help us cope.    Coping with Grief       &nb

When a Pet Dies Visual

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

This visual explains what happens when a pet dies and how it might make us feel. When a Pet Dies     Other visuals are available in the Grief and Loss section of our Resource Library

Common Mental Health Disorders and Cognitive Decline in a Longitudinal Down Syndrome Cohort

Author: Idris et al. - BJPsych Open (2023)

Abstract Background:  Down syndrome is the most common genetic cause of intellectual disability and Alzheimer's disease. In the general population, common mental disorders (CMDs), inc

Psychotherapy for Individuals with Down Syndrome

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Key Points Some people with Down syndrome benefit from psychotherapy. Therapists work with individuals with a variety of skills, needs, and goals. Psychotherapy is often one part of a treatment plan t

Grief and Loss Podcast Episodes

Author: Rose Reif, LCMHC, CRC, BC-TMH - Multiple Organizations

Rose Reif, a licensed clinical mental health counselor, certified rehabilitation counselor, and qualified developmental disability and mental health professional, has been featured on two podcast epis

Behavior Change

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Any and all behavior change should be viewed as a possible communication tool. For some people with Down syndrome (DS), like some without DS, a behavior change may be a form of communication. This is

Incidence and Clinical Outcomes of Pneumonia in Persons with Down Syndrome in the United States

Author: Janoff et al. - Vaccine (2023)

Abstract Background:  Persons with Down syndrome (DS) experience an increased risk of pneumonia. We determined the incidence and outcomes of pneumonia and relationship to underlying comorbidi

Evaluating Challenging Behaviors in Adults with Down Syndrome

Author: Down Syndrome Medical Interest Group - USA - DS-ASD Workgroup

Evaluating Challenging Behaviors in Adults with Down Syndrome    is a resource for health care professionals developed by the Down Syndrome-Autism Spectrum Disorder Workgroup of the

Staff Turnover

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

For people living in a group home or participating in day programs, the staff members often become like family. This is especially true if the person does not have other family involved in his life bu

Opposite Actions

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

When we experience an emotion, there is often a behavioral urge that comes along with it. When we feel angry, we may have the urge to yell or break things or hurt someone. When we feel sad, we may hav

Calming vs. Coping Strategies

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

What is the difference between calming and coping strategies? Many times, we use the terms "calming" and "coping" interchangeably. There is often overlap in the str

Reframing our Thoughts

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Reframing our thoughts is a strategy to change the way we think about a situation, person, or relationship. Sometimes, we can get stuck in thought patterns that negatively impact our mood and behavior

Resources on Healthy Ways to Manage Stress

Author: Adult Down Syndrome Center - Resource List

Learning how to manage our stress in healthy ways is a lifelong process. We have compiled a list of resources below that may help people with and without Down syndrome who are workin

Eating Refusal

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received the following question:  I have a son with Down syndrome. He had testicular cancer in his late 20s. Since then, he seems to have developed an eating disorder. He always feels he i

Fear of Heights

Author: Brian Chicoine, MD and Abby Rowley, LCSW - Adult Down Syndrome Center

We have seen people with Down syndrome with a variety of phobias. Concern about heights is one we see more commonly. For this fear in particular, we often ask if it is indeed a phobia or if it is caus

Contingency Maps

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Contingency maps can help an individual visualize their behavioral choices and the outcomes/consequences of their behaviors. They can help make the problem-solving process more concrete. The individua

Automatic Negative Thoughts (ANTs)

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

The handouts linked below were developed to teach individuals with Down syndrome how to think more positively. If an individual has an automatic negative thought (or ANT), they can squish it or brush

My Stress Triggers Visual

Author: Abigail Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

There are many things that might make us feel stressed.  My Stress Triggers    gives examples of things that might make us feel stressed. What causes you to feel st

How to Cope with Stress

Author: Abby Rowley, LCSW - Licensed Clinical Social Worker, Adult Down Syndrome Center

Coping with stress is an important and necessary part of life. There are some strategies that can help us manage our reactions to different life stressors. The steps below are strategies that I use wi

Behavior Changes in Individuals with Down Syndrome Webinar Recording (2/23/2023)

Author: Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD, Katie Frank, PhD, OTR/L, and Abby Rowley, LCSW, on February 23, 2023. In this webinar, the presenters define, iden

Hypoglycemia (Low Blood Sugar)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is hypoglycemia? Hypoglycemia is the medical term for low blood sugar or low glucose. Blood sugar or glucose levels can be measured with a blood test. Healthcare providers make the diagnosis of h

Attention Deficit/Hyperactivity Disorder (AD/HD)

Author: Brian Chicoine, MD, and Dennis McGuire, PhD, LCSW - Adult Down Syndrome Center

*This article was adapted from  Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges, 2nd Edition . What is attention-deficit/hyperactivi

Obsessional Slowness

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is obsessional slowness? Obsessional slowness is an apparent form of obsessive-compulsive disorder that appears to be more common in people with Down syndrome. At this point, much more needs to b

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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