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For people with Down syndrome, family members, caregivers and professionals.

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Tips for a Sensory-Friendly Haircut

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

While many find a trip to the salon or barbershop relaxing and look forward to their new look, getting a haircut can be an uncomfortable and even frightening experience for those with sensory

Sensory Processing Strategies to Promote Mental Wellness in People with Down Syndrome Webinar Recording (5/11/2022)

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The video below is a recording of a webinar presented by Katie Frank, PhD, OTR/L of the Adult Down Syndrome Center. Dr. Frank is an occupational therapist at the Center. In the webinar, she describes

Weighted Blankets

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The use of weighted blankets is a sensory technique that provides deep pressure stimulation. Evidence suggests that deep pressure stimulation produces a calming effect to the autonomic nervous system

Gout in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Gout is more common in people with Down syndrome (DS) (as indicated by the studies at this link  and this link ). Gout is a type of inflammatory arthritis caused by

Helping Children and Adults with Down Syndrome to Cope with Grief Webinar Recording (7/28/2021)

Author: Rose Reif, MS, LCMHC, CRC, BC-TMH - Down Syndrome Association of Delaware

On July 28, 2021, the Down Syndrome Association of Delaware hosted a webinar called, "Helping Children and Adults with Down Syndrome to Cope with Grief." The presenter was Rose Reif,

Does TSH tell the whole story?

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Thyroid conditions such as hypothyroidism (underactive thyroid) and hyperthyroidism (overactive thyroid) are more common in people with Down syndrome. Current guidelines for adults with Down syndrome

Sensory Processing and Down Syndrome

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The Sensory System No one has a perfectly functioning sensory system. We all have sensory preferences and even sensory needs, each unique to how our central nervous system perceives and processes sens

Let's Talk about Death: A Booklet about Death and Funerals for People with Down's Syndrome

Author: Down's Syndrome Scotland

This booklet for individuals with Down syndrome explains death using easy-to-read language. It is provided by Down's Syndrome Scotland (www.dsscotland.org.uk/resources/publications/).

Lower Body Joint Compression

Author: Katie Frank, PhD, OTR/L

This article describes a form of proprioceptive input called lower body joint compression which may be helpful for individuals with sensory challenges.

Affordable Sensory Equipment

Author: Katie Frank, PhD, OTR/L

In this handout, our occupational therapist provides recommendations for affordable sensory equipment .

Coping With Transitions, Loss, and Grief

Author: Melissa Levin, MSW, LICSW

This is a handout with information on coping with transitions (such as leaving high school, changes in family dynamics, etc.) and the feelings of loss and grief that can accompany these transitions.

Upper Body Joint Compression

Author: Katie Frank, PhD, OTR/L

This article describes a form of proprioceptive input called upper body joint compression which may be helpful for individuals with sensory challenges.

Diabetes in Adults with Down Syndrome

Author: Chuan-Li Fan, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Diabetes mellitus (DM) is a disease marked by the inability of the body to regulate sugars through insulin. Either the body does not produce enough insulin in the pancreas to help the body absorb suga

Bereavement

Author: Down's Syndrome Association - Booklet

People with and without Down syndrome experience grief and sadness when a loved one dies. We have learned from individuals with Down syndrome and their families that grief can be experienced different

Influenza

Author: Shelly Verma, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Influenza, or the flu, is caused by the influenza virus. Flu season starts in the fall and peaks between December to March. However, it can last as late as May. There are many different strains of the

Hypothyroidism

Author: Ima V. Jonkheer, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Hypothyroidism is a common issue that affects many people with Down syndrome. The thyroid hormones play many important roles in our bodies including influencing our metabolism, production of necessary

Grief - Ways to Help Support Someone with Down Syndrome Who is Grieving

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

Ways to Help Support Someone with Down Syndrome Who is Grieving Acknowledge and normalize the person’s feelings. It’s important for someone to know that their feelings, whatever th

Grief - 10 Things I Know

Author: Shana Sexton, LCSW - Social Worker, Adult Down Syndrome Center

I’ve heard it said that everyone experiences loss in their lives, although some people have more than others. People with Down syndrome encounter situations involving grief and loss just lik

Upper Respiratory Infection - The Common Cold

Author: Jenna Okerblom, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is it? Most commonly caused by respiratory viruses. Signs and symptoms of the common cold include fever, cough, runny nose, congestion, sore throat, headache, and aches and pains all over. Usuall

Thyroid, Weight, and Metabolism

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We were sent a question about thyroid, weight, and metabolism in people with Down syndrome. People with Down syndrome more commonly have hypothyroidism (underactive thyroid), one symptom of which is w

Proprioceptive Input

Author: Katie Frank, PhD, OTR/L - Occupational therapist, Adult Down Syndrome Center

Many individuals with Down syndrome (DS) experience difficulty with their proprioceptive system. The proprioceptive sensors in our body are responsible for providing feedback so we know where our body

Ask the Doctor: Thyroid Testing

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Question: Recently, my daughter’s annual thyroid blood work came back as follows: TSH 9.74 (normal: 0.3-5.0), T3 27.8 (normal: 25.0-35.0), Free T4 1.7 (normal: 1.0-4.3), and T4 6.2 (normal:

Hypothyroidism Presenting as Severe Psychological and Mental Dysfunction

Author: Chicoine

This is an article written by Brian Chicoine in Success Stories in Developmental Disabilities. Vol II. edited by Dale Antanitus and published in 1993.

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