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For people with Down syndrome, family members, caregivers and professionals.

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Development of a Clinic for Adults With Down Syndrome

Author: Chicoine, McGuire, Hebein, Gilly

This is an article published in the journal Mental Retardation in 1994.

First Then Visual

Author: Adult Down Syndrome Center

This visual can be used to show what needs to be completed (first) before moving to the next activity (then).

Sport Preparticipation Screening for Asymptomatic Atlantoaxial Instability in Patients with Down Syndrome

Author: Tomlinson et al. - Clinical Journal of Sport Medicine (2018)

Abstract Down syndrome (DS) is a clinical syndrome comprising typical facial features and various physical and intellectual disabilities due to extra genetic material on chromosome 21, with one in eve

Ligamentous Laxity

Author: Peter Waller, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Ligaments are bands of fibrous connective tissue in our body that connect one bone to another bone and provide support to our joints. In people with Down syndrome, these ligaments tend to be loose lea

Atlantoaxial Instability Screening

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Atlantoaxial instability (AAI) is subluxation or slippage of the first neck vertebrae in relation to the second. It is more common in people with Down syndrome (DS) and there are unique screening cons

Family Care Toolkit

Author: National Down Syndrome Congress - Resource

The Family Care Toolkit linked below is a resource created by the National Down Syndrome Congress with the support of the Global Down Syndrome Foundation. It helps families and primary caregivers gath

How I Learn

Author: GiGi's Playhouse - Video and Handout

The link below goes to a resource from Gigi's Playhouse called "How I Learn." It includes a video and handout that share information about how individuals with Down syndrome

Influenza

Author: Shelly Verma, DO - Family Medicine Resident, Advocate Lutheran General Hospital

Influenza, or the flu, is caused by the influenza virus. Flu season starts in the fall and peaks between December to March. However, it can last as late as May. There are many different strains of the

Attending a Summer Camp

Author: Shane Sexton, LCSW - Social Worker, Adult Down Syndrome Center

It may be hard to believe when many of us are still shivering in our winter coats, but summer is just around the corner! Summer is not only a time to soak up sunshine and enjoy family vacations but a

Upper Respiratory Infection - The Common Cold

Author: Jenna Okerblom, DO - Family Medicine Resident, Advocate Lutheran General Hospital

What is it? Most commonly caused by respiratory viruses. Signs and symptoms of the common cold include fever, cough, runny nose, congestion, sore throat, headache, and aches and pains all over. Usuall

Estimation of the Number of People with Down Syndrome in the United States

Author: de Graaf et al. - Genetics in Medicine (2016)

Abstract Purpose:  An accurate accounting of persons with Down syndrome (DS) has remained elusive because no population-based registries exist in the United States. The purpose of this study

Morbidity and Medication in a Large Population of Individuals with Down Syndrome Compared to the General Population

Author: Alexander et al. - Developmental Medicine and Child Neurology (2015)

Abstract Aim: The aim of this study was to describe the incidence of morbidities and the prevalence of medical prescriptions in a large Down syndrome population. Me

Supporting a Happy, Healthy Adolescence for Young People with Down Syndrome and Other Intellectual Disabilities: Recommendations for Clinicians

Author: Baumer & Davidson - Current Opinion in Pediatrics (2014)

Abstract Purpose of Review:  To review clinical updates and current healthcare issues for adolescents with Down syndrome and intellectual disabilities, including behavioral, social, and emoti

Knee Pain from Patellofemoral Syndrome

Author: Julia Howell, MD - Family Medicine Resident, Advocate Lutheran General Hospital

People with Down syndrome can often have laxity, or looseness, of the ligaments that support joints. The knee is no exception. The patella, or knee cap, attaches to the muscles of the upper and lower

Definition of Health

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Health is a state of complete physical, mental, and social well-being and not merely the absence of disease or infirmity. (World Health Organization) At the Adult Down Syndrome Center, we strive to ad

Pandemic (H1N1) 2009 Virus and Down Syndrome Patients

Author: Perez-Padilla et al. - Emerging Infectious Diseases (2010)

Abstract We compared prevalence of hospitalization, endotracheal intubation, and death among case-patients with and without Down syndrome during pandemic (H1N1) 2009 in Mexico. Likelihoods of hospital

Spondylolisthesis and Cervical Subluxation

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We received a question regarding spondylolisthesis. Spondylolisthesis is a slippage of one vertebrae over another. Most commonly this refers to slippage in the lumbar (lower) part of the back. Slippag

The Guide to Good Health for Teens & Adults with Down Syndrome

Author: Brian Chicoine, MD & Dennis McGuire, PhD - Book (2010)

*Woodbine House Publishing closed in 2022. We recommend reaching out to your local Down syndrome organization or local library to find out if they have a copy you can borrow. Booksellers that sell use

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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