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For people with Down syndrome, family members, caregivers and professionals.

Duration: 21 ms, Number of Results: 46

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Measles and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Measles is a highly contagious infection. It can have very serious complications. There has been a recent increase in measles infections.  Little is known about measles infection s

Chore Chart

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

This  Chore Chart    has images and templates that can be used to create a weekly chore schedule and/or keep track of when chores are completed.    &nb

Connective Tissue and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Key Points Connective tissue is the tissue that helps hold our bodies together. Connective tissue is different in people with Down syndrome compared to others.  People with Down syndrome have

A Comprehensive Review of the Relationship Between Oral Health and Down Syndrome

Author: Botero et al. - Current Oral Health Reports (2024)

Abstract Purpose of Review:  Individuals with Down syndrome (DS) may be more susceptible to oral disorders as a result of a combination of genetic factors, immunological disturbances, anatomi

Tips for Going Up and Down Stairs Safely

Author: Katie Frank, PhD, OTR/L and Abby Rowley, LCSW - Adult Down Syndrome Center

Going up and down stairs can be challenging for some people with Down syndrome. Aging, differences in depth perception, unsteady gait, and other issues may contribute to difficulty with navigating sta

Brushing Teeth Visuals

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

The visuals under the headers remind us of the steps for brushing our teeth. Tap or click on the headers to find printable versions for electric and manual toothbrushes. There are also versio

Overpronation

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

What is overpronation of the ankle? In short, when we walk, typically the outside of our heel strikes the ground first and then the rest of our foot rolls to come in contact with the ground. Then our

Development of Atlantoaxial Instability in an Older Person with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

The parent of a 47-year-old man with Down syndrome submitted the following question: Can a person with Down syndrome develop atlantoaxial instability in adulthood? My son is 47. When he was younger, X

Trampolines

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We periodically get asked about the use of trampolines by people with Down syndrome. Trampolines cause many injuries to both children and adults. The American Academy of Orthopaedic Surgeons

Therapeutic Use of Games

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

While games are widely considered to be a meaningful and enjoyable activity, their therapeutic benefits can be easily overlooked. Games provide opportunities to work on a wide variety of skills we use

Bunions in People with Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

A bunion (also known as hallux valgus) is a bony projection or bump that forms at the base of the big toe. If the joint at the base of the big toe is subjected to great pressure while walking, the big

Fun Activities to Improve Fine Motor Skills

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

We use fine motor skills to complete any task that requires using the small muscles in our hands or wrists. This includes a wide variety of daily activities completed at home, work, and school: using

Daily Tasks to Improve Fine Motor Skills

Author: Monica Prindiville, OTS and Katie Frank, PhD, OTR/L - Occupational Therapy Student and Occupational Therapist

We use fine motor skills for many tasks throughout the day - any task involving use of the small muscles in our hands and wrists. A few examples of activities we do every day that require fine motor s

Obstructive Sleep Apnea, Cerebrovascular Disease, and Amyloid in Older Adults with Down Syndrome Across the Alzheimer's Continuum

Author: Lao et al. - Sleep Advances: A Journal of the Sleep Research Society (2022)

Abstract We determined the extent to which obstructive sleep apnea (OSA) is associated with increased cerebrovascular disease and amyloid burden, and the relation of the two processes across clinical

Evaluation of Upper Airway Stimulation for Adolescents with Down Syndrome and Obstructive Sleep Apnea

Author: Yu et al. (2022) - JAMA Otolaryngology-Head & Neck Surgery

Abstract Importance :  Patients with Down syndrome have a high incidence of persistent obstructive sleep apnea (OSA) and limited treatment options. Upper airway hypoglossal stimulation has be

Advancements in the Treatment of Obstructive Sleep Apnea Webinar Recording (11/8/2021)

Author: Michael Layland, MD - Otolaryngologist

The video below is a recording of a webinar presented by Dr. Michael Layland on November 8, 2021. Dr. Layland is an otolaryngologist at the Ear Nose & Throat Center and Advocate Lutheran Gener

Create a Bedtime/Sleep Routine Visual

Author: Katie Frank, PhD, OTR/L

This document includes a template and images that individuals with Down syndrome and their families can use to create a bedtime routine visual.

Prevalence of Infectious Diseases Among 6078 Individuals with Down Syndrome in the United States

Author: Fitzpatrick et al. - Journal of Patient-Centered Research and Reviews

Abstract A recent disease prevalence study of the largest documented Down syndrome (DS) cohort in the United States strongly suggested significant disparity in general infectious disease conditions am

How to Brush Your Teeth Video

Author: Bridget Brown, Blase Brown, DDS, MA, and Adult Down Syndrome Center - Video

In this video, Bridget describes and demonstrates how to brush your teeth using a manual toothbrush and an electric toothbrush. Our Resource Library also has Brushing Teeth Visuals  that corr

Dental Implants

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

We sometimes receive questions about dental implants. A small number of people with Down syndrome seen in our office have reported that they opted to get dental implants, and most of these individuals

Night Terrors in People with Down Syndrome

Author: Brian Chicoine, MD - "Ask Dr. Chicoine" LuMind IDSC Foundation

Night terrors (or sleep terrors) are described as a sudden arousal from sleep associated with sitting up in bed, intense fear, and a piercing scream. Symptoms include increased heart rate, increased r

Going to the Dentist Social Stories

Author: Pennsylvania ASERT - Autism Services, Education, Resources, and Training Collaborative

The social stories linked below are intended to help individuals with Down syndrome and other intellectual or developmental disabilities prepare for and feel more comfortable with going to the dentist

Sleep Disorders in Adults with Down Syndrome

Author: Gimenez, Altuna, Blessing, Osorio, & Fortea - Journal of Clinical Medicine (2021)

Abstract Sleep disorders, despite being very frequent in adults with Down syndrome (DS), are often overlooked due to a lack of awareness by families and physicians and the absence of specific clinical

Addressing Challenges with Falling or Staying Asleep

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

We frequently receive questions about sleep. Individuals with Down syndrome and/or their families report that they have difficulty falling asleep or staying asleep. In this article, we will share stra

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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