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For people with Down syndrome, family members, caregivers and professionals.

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Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 - Data from the Trisomy 21 Research Society and the UK ISARIC4C Survey

Author: Huls et al. - EClinicalMedicine

Abstract Background:  Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may impact the clinical course of COVID-19.  Methods:&

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Visuals and Videos About Wearing Masks During COVID-19

Author: Adult Down Syndrome Center - Resource List

Several organizations have created helpful resources about wearing masks during COVID-19. We have provided links to some of them below.  VISUALS / STORIES / PLAIN LANGUAGE RESOURCES Wearing a

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Financial Wellness: A Guide for Individuals with Disabilities, their Families and Caregivers

Author: National Down Syndrome Society - In collaboration with Voya Cares

In collaboration with Voya Cares, the National Down Syndrome Society published a guidebook on financial wellness. Topics include the basics of financial wellness, government benefits, workplace benefi

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Routines during the Pandemic

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

When the COVID-19 pandemic started, my first thoughts of concern for our patients and all people with Down syndrome were around the virus and the potential of becoming severely ill with COVID-19. We h

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Sharing Touch and Affection Visual

Author: Adult Down Syndrome Center - Visual

Sharing Touch and Affection Sharing Touch and Affection Types of touch and affection Hugging Holding hands Kissing Rules for sharing touch and affection Know your boundaries  What types of to

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Tourette Syndrome and Down Syndrome

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Tourette syndrome (TS) is a hereditary, chronic neuromuscular condition consisting of motor and vocal tics. Tics are sudden, involuntary, brief, repetitive movements and vocalizations.* Motor tics can

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Ingredients for a Successful Relationship Visual

Author: Adult Down Syndrome Center - Visual

Ingredients for a Successful Relationship   Ingredients for a Successful Relationship Good communication plus  positive interactions equals  a successful relationsh

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Communication Board

Author: Adult Down Syndrome Center - Visual

Communication Board This communication board contains words and phrases with corresponding images. An individual can point at one of the words or phrases to communicate needs, wants, and feelings.&

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Tips for Running Virtual Social Groups

Author: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center

Since April, staff at the Adult Down Syndrome Center have been hosting online socials and social skills groups via Zoom. Our goal is to encourage social participation and engagement while we maintain

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Aging and Alzheimer's Disease in Adults with Down Syndrome Webinar Recording (11/10/2020)

Author: Brian Chicoine, MD and Katie Frank, PhD, OTR/L - Adult Down Syndrome Center

The video below is a recording of a webinar presented by Brian Chicoine, MD and Katie Frank, PhD, OTR/L on November 10, 2020. Dr. Chicoine is the co-founder and medical director of the Adult Down Synd

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Mental Wellness and Aging in Adults with Down Syndrome Webinar Recording (10/27/2020)

Author: Brian Chicoine, MD - Medical Director, Adult Down Syndrome Center

Title:  Mental Wellness and Aging in Adults with Down Syndrome Date:  October 27, 2020 Presenter:  Brian Chicoine, MD Host Organization:  Down Syndrome Association

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Clinical Characteristics of Individuals with Down Syndrome Deceased with COVID-19 in Italy - A Case Series

Author: Villani et al. - American Journal of Medical Genetics Part A

Abstract Background:  Persons with Down syndrome (DS) are presumed to be at high risk of severe CoVID-19 due to immune dysregulation and often compromised cardiopulmonary function. Aim of the

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An Introduction to Zoom

Author: Adult Down Syndrome Center

These slides provide information about why and how to use Zoom.

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How to Wash Your Hands Visual

Author: Adult Down Syndrome Center

This visual handout corresponds to our video on how to wash your hands. It shows the steps for handwashing.

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How to Wash Your Hands Video

Author: Adult Down Syndrome Center - Video

In this video below, Jeff demonstrates how we should wash our hands. As Jeff explains, handwashing is an important thing we can do to keep ourselves healthy! A corresponding visual handout  

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Helping an Individual with Down Syndrome Tolerate COVID-19 Testing

Author: Adult Down Syndrome Center - Resource List

A common method to test for COVID-19 is to use a long swab to collect a specimen from the nasopharyngeal region, which is located at the back of the inside of the nose.  While the procedure i

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Strategies to Help Me Calm Down

Author: Adult Down Syndrome Center - Visual

Strategies to Help Me Calm Down   If I feel stressed or anxious, I can... Calm my breathing Pretend to smell a flower to inhale Pretend to blow out a candle to exhale Calm my thoughts Squeeze

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Strategies to Control My Anger

Author: Adult Down Syndrome Center - Visual

Strategies to Control My Anger When I feel angry or mad, I can do things to help me calm down. I can:  Do deep breathing Count to 10 Walk away Listen to music Go for a walk Watch TV Ask for h

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Plan for When I'm Angry

Author: Adult Down Syndrome Center - Visual

When we feel angry, there are things we can do to help us calm down. It can be helpful to make a plan, so we know what we can do if we feel angry. The template linked below can be used to mak

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The Feelings Volcano

Author: Adult Down Syndrome Center

This visual uses a volcano to describe how our emotions can escalate.

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The Feelings Volcano

Author: Adult Down Syndrome Center - Visual

The Feelings Volcano This handout shows what happens when our feelings "build up" and become overwhelming. Fill in the spaces on the right with things you can do to help yourself cal

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Catatonia in Down Syndrome: Systematic Approach to Diagnosis, Treatment and Outcome Assessment Based on a Case Series of Seven Patients

Author: Miles et al. - Neuropsychiatric Disease and Treatment

Abstract Objective:  The goal is to expand our knowledge of catatonia occurring in adolescents and young adults with Down syndrome (DS) by describing the first prospective, consecutive, well-

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Making Good Choices Visual

Author: Adult Down Syndrome Center - Visual

Making Good Choices, female   Making Good Choices, male   Making Good Choices I make choices everyday about what I say and what I do. I can make good choices! Good choices are&nb

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Attention-Deficit/Hyperactivity Disorder in Individuals with Down Syndrome Video

Author: Joseph Pereira - Harvard Medical School, MassGeneral Hospital for Children

The video below was narrated and presented by Joseph Pereira, a 4th year medical student at Harvard Medical School, as part of his work with the MGH Down Syndrome Program . He shares information about

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Please note: The information on this site is for educational purposes only and is not intended to serve as a substitute for a medical, psychiatric, mental health, or behavioral evaluation, diagnosis, or treatment plan by a qualified professional. We recommend you review the educational material with your health providers regarding the specifics of your health care needs.

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